Published on 12, July, 2020
Hi,
I am new to the forum as my daughter was only diagnosed with Austistic Spectrum Disorder last summer, after a year and a half of assessments. We applied for PIP last April (I am her appointee) and have just been sent a letter saying she will not receive it, despite never going out alone and not being able to cope with communication with people other than her immediate family, and that is limited. She scored 4 points for 'engaging with other people face to face' and 4 points for 'planning and following journeys'. Zero points for everything else, despite a face to face assessment where I explained that she goes out on average once a week, sometimes less, and is always accompanied. She has lots of sensitivities, particularly with food.
Has anyone else experienced this? I am preparing an appeal. It says on the covering letter ' I realise you have a disability or health condition and receiving this decision isn't the news you were hoping for'. It's a joke.
I am a 30 year old ASD suffer, didnt know i had it till last year.
I had gone for PIP back in March 2015, it took them 2 month to send me forms out as that i couldnt talk to them, i had to get promission to get my mate to contact them. When i got the forms i filled them in with support from my mate and got them sent back as soon as i could. After a few months of waiting i had a phone from the DWP asking me why i didnt attened a appointment with the medical team ATOS, when i past the phone on to my mate he told them i didnt get any form of letter and will be requiring a new appointment.
After only two weeks i had one more phone call from ATOS nurse, to ask me questions she wouldnt talk to my mate about the claim and said if i didnt talk to her she would stop the claim, so i tryed my best to talk to the person as well as panicing at the same time. She was pushing for answers what i had to answer one way. I was on the phone for about 45 mins and the person said this taking to long right i think i got plenty here to do your claim but with the answers you gave me i am going to tell you now that you will not be getting PIP.
I went for testing back in Oct 2015 to see if i had ASD, when i finsihed with team who was asscesing me they told i had ASD, they sent out the report what i then sent to the PIP team the nurse sent me a letter saying that she will not be taking the report as edviance and i sould stop the claim right away, i gone through all the right process and now going for my appieal.
the report i got sent to me matches everything on the form i filled in with help, and still carnt go out with someone there with me, or even planning in the rute ect this takes me and my mate five weeks to do. I am like a prissoner in my own home.
With the ASD i do suffer with Dipression and epilepsy witch i take meds for. It just seems that i am having to fight for the benefits i know that i can get, it as now taken nearly one year to get to this point, i can only just about talk to my mate and family without stressing and getting upset, i try to live a life but i still find it hard.
When i sent them a letter to reconcider my claim they moved it from being no points to only just 4 points due to the report from the nurse, who i think and other people think hasnt got no idea of what it is like or got any clue to what ASD is.
If any person who as got PIP due to ASD then please let me know i do have appointment where i got my mate, and my career with one other person atteneding to ensure that i am safe and that i dont stress to much. on the 23rd March 2016.
Thanks all