17 yr Autistic daughter just refused PIP

Hi,

I am new to the forum as my daughter was only diagnosed with Austistic Spectrum Disorder last summer, after a year and a half of assessments. We applied for PIP last April (I am her appointee) and have just been sent a letter saying she will not receive it, despite never going out alone and not being able to cope with communication with people other than her immediate family, and that is limited. She scored 4 points for 'engaging with other people face to face' and 4 points for 'planning and following journeys'. Zero points for everything else, despite a face to face assessment where I explained that she goes out on average once a week, sometimes less, and is always accompanied. She has lots of sensitivities, particularly with food.

Has anyone else experienced this? I am preparing an appeal. It says on the covering letter ' I realise you have a disability or health condition and receiving this decision isn't the news you were hoping for'. It's a joke.

Parents
  • Hi that is very difficult to deal with as it was for us. u16, My son only received low mobility DLA and nil care. Information submitted for PIP was almost identical to that submitted for DLA appeal, which was refused. It was very confusing, however the things I found that worked for us was to read the PIP regs  & points system on the gov.uk website and use the Disability Rights handbook to help shape my appeal documentation. It may also be helpful to contact the nearest community legal advice centre to get their support also.

Reply
  • Hi that is very difficult to deal with as it was for us. u16, My son only received low mobility DLA and nil care. Information submitted for PIP was almost identical to that submitted for DLA appeal, which was refused. It was very confusing, however the things I found that worked for us was to read the PIP regs  & points system on the gov.uk website and use the Disability Rights handbook to help shape my appeal documentation. It may also be helpful to contact the nearest community legal advice centre to get their support also.

Children
No Data