Published on 12, July, 2020
Hi,
I am new to the forum as my daughter was only diagnosed with Austistic Spectrum Disorder last summer, after a year and a half of assessments. We applied for PIP last April (I am her appointee) and have just been sent a letter saying she will not receive it, despite never going out alone and not being able to cope with communication with people other than her immediate family, and that is limited. She scored 4 points for 'engaging with other people face to face' and 4 points for 'planning and following journeys'. Zero points for everything else, despite a face to face assessment where I explained that she goes out on average once a week, sometimes less, and is always accompanied. She has lots of sensitivities, particularly with food.
Has anyone else experienced this? I am preparing an appeal. It says on the covering letter ' I realise you have a disability or health condition and receiving this decision isn't the news you were hoping for'. It's a joke.
Hi
I can sympathise with you - the process takes so long -its a joke. Go with the appeal and arm yourself with as many back up and support letters from others to back up your daughters diagnosis and the way it affects her. Keep at them and if the appeal fails go higher !!! Dont give up!! Threaten to sue the department if they dont take you seriously!! Your daughter is entitled to this money - ask for another medical appointment too with a different person. I fought tooth and nail for my boy who wouldnt leave the house due to crippling social anxiety. It was only when he became suicidal that they listened and helped. Keep going!! Hang on in there!! x