17 yr Autistic daughter just refused PIP

Hi,

I am new to the forum as my daughter was only diagnosed with Austistic Spectrum Disorder last summer, after a year and a half of assessments. We applied for PIP last April (I am her appointee) and have just been sent a letter saying she will not receive it, despite never going out alone and not being able to cope with communication with people other than her immediate family, and that is limited. She scored 4 points for 'engaging with other people face to face' and 4 points for 'planning and following journeys'. Zero points for everything else, despite a face to face assessment where I explained that she goes out on average once a week, sometimes less, and is always accompanied. She has lots of sensitivities, particularly with food.

Has anyone else experienced this? I am preparing an appeal. It says on the covering letter ' I realise you have a disability or health condition and receiving this decision isn't the news you were hoping for'. It's a joke.

Parents
  • Hi DogLady,

    I was so pleased to read your message. Its just so cruel that she will have it all to do again next year!!

    I have never seen myself as a particularly political person but my dealings with MPS and government Ministers over PIP have forced me to engage with politics. I am devasted that the goverment now has another 5 years to continue unchecked with the awful PIP system which even if it were fit for purpose is so back logged because it was launched before the infrastructure to support it was properly in place and tested. I cannot understand why in a democratic country like this, there hasn't been a national outcry on behalf of the disabled and their carers. I guess its because they themselves find it so hard to cry out. 

    I assume DogLady that Atos disagreed with the diagnosis of your daughter's medical team, GP or whoever helped you with your evidence. Where else in this country can a non medical body overrule the opinions of medical specialists. I am flabbergasted. 

Reply
  • Hi DogLady,

    I was so pleased to read your message. Its just so cruel that she will have it all to do again next year!!

    I have never seen myself as a particularly political person but my dealings with MPS and government Ministers over PIP have forced me to engage with politics. I am devasted that the goverment now has another 5 years to continue unchecked with the awful PIP system which even if it were fit for purpose is so back logged because it was launched before the infrastructure to support it was properly in place and tested. I cannot understand why in a democratic country like this, there hasn't been a national outcry on behalf of the disabled and their carers. I guess its because they themselves find it so hard to cry out. 

    I assume DogLady that Atos disagreed with the diagnosis of your daughter's medical team, GP or whoever helped you with your evidence. Where else in this country can a non medical body overrule the opinions of medical specialists. I am flabbergasted. 

Children
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