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17 yr Autistic daughter just refused PIP

DogLady
over 9 years ago

Hi,

I am new to the forum as my daughter was only diagnosed with Austistic Spectrum Disorder last summer, after a year and a half of assessments. We applied for PIP last April (I am her appointee) and have just been sent a letter saying she will not receive it, despite never going out alone and not being able to cope with communication with people other than her immediate family, and that is limited. She scored 4 points for 'engaging with other people face to face' and 4 points for 'planning and following journeys'. Zero points for everything else, despite a face to face assessment where I explained that she goes out on average once a week, sometimes less, and is always accompanied. She has lots of sensitivities, particularly with food.

Has anyone else experienced this? I am preparing an appeal. It says on the covering letter ' I realise you have a disability or health condition and receiving this decision isn't the news you were hoping for'. It's a joke.

Parents
  • over 9 years ago

    Our grandson's major challenges come because he can't see consequence, can't prioritize and therefore can't make choices or organise himself. Load on top of that problems with empathy, enough of a coping strategy to make people think that you can interact with others in a way that they would understand and high intelligence and both he and we were in for a rough ride. Far more is expected of him by society than he is able to give at this stage in his life.

    If you can't look back and analyse your behaviour, if you can't look forward and imagine what might happen and if you can't put yourself in somebody else's shoes ie 'how would I feel if somebody stole my money' or ' what would it feel like if my parents punched me in the face' it must be incredibly hard to understand how to behave. We are all shaped by the world around us and our understanding of it so if you see the world differently its not surprising that you would find life confusing and frightening. Our grandson believes that the world should work for him...because it rarely does he is frequently confused, enraged and disappointed with it.

Reply
  • over 9 years ago

    Our grandson's major challenges come because he can't see consequence, can't prioritize and therefore can't make choices or organise himself. Load on top of that problems with empathy, enough of a coping strategy to make people think that you can interact with others in a way that they would understand and high intelligence and both he and we were in for a rough ride. Far more is expected of him by society than he is able to give at this stage in his life.

    If you can't look back and analyse your behaviour, if you can't look forward and imagine what might happen and if you can't put yourself in somebody else's shoes ie 'how would I feel if somebody stole my money' or ' what would it feel like if my parents punched me in the face' it must be incredibly hard to understand how to behave. We are all shaped by the world around us and our understanding of it so if you see the world differently its not surprising that you would find life confusing and frightening. Our grandson believes that the world should work for him...because it rarely does he is frequently confused, enraged and disappointed with it.

Children
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