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17 yr Autistic daughter just refused PIP

DogLady
over 9 years ago

Hi,

I am new to the forum as my daughter was only diagnosed with Austistic Spectrum Disorder last summer, after a year and a half of assessments. We applied for PIP last April (I am her appointee) and have just been sent a letter saying she will not receive it, despite never going out alone and not being able to cope with communication with people other than her immediate family, and that is limited. She scored 4 points for 'engaging with other people face to face' and 4 points for 'planning and following journeys'. Zero points for everything else, despite a face to face assessment where I explained that she goes out on average once a week, sometimes less, and is always accompanied. She has lots of sensitivities, particularly with food.

Has anyone else experienced this? I am preparing an appeal. It says on the covering letter ' I realise you have a disability or health condition and receiving this decision isn't the news you were hoping for'. It's a joke.

Parents
  • over 9 years ago

    Hi,  

    I'm afraid I have not had to deal with PIP as my son was diagnosed with Autism/ Aspergers before it changed to PIP, if that is what DLA is now called.

    The reply from Crystal is correct, however hard it is, you have to think of every scenario that your child could be in, and how they might respond.

    My son seems absolutely fine until something unexpected happens.

    You really have to try and 'put yourself in her shoes' (apologies if you are Autistic youself !) what could possibly go wrong?

    Could she understand the difference between a Grin and a Smile from a stranger?

    She may need to follow rules e.g. 'Your mum said you need to come home now'

    Would she follow routine, even if the situation had changed? ' I always walk this way because it's safe'

    Or 'Hey we go to school together, you know you can trust me'

    All these things seem 'common sense' but could be high risk.

    Sorry if it makes you anxious but it needs to be done.

Reply
  • over 9 years ago

    Hi,  

    I'm afraid I have not had to deal with PIP as my son was diagnosed with Autism/ Aspergers before it changed to PIP, if that is what DLA is now called.

    The reply from Crystal is correct, however hard it is, you have to think of every scenario that your child could be in, and how they might respond.

    My son seems absolutely fine until something unexpected happens.

    You really have to try and 'put yourself in her shoes' (apologies if you are Autistic youself !) what could possibly go wrong?

    Could she understand the difference between a Grin and a Smile from a stranger?

    She may need to follow rules e.g. 'Your mum said you need to come home now'

    Would she follow routine, even if the situation had changed? ' I always walk this way because it's safe'

    Or 'Hey we go to school together, you know you can trust me'

    All these things seem 'common sense' but could be high risk.

    Sorry if it makes you anxious but it needs to be done.

Children