I joined a new gp practice and met with the compliance manager for the first time to discuss my needs. She told me autism is not disabling and that my condition is a choice i made. How am I supposed to process this? Is this appropriate behaviour?
I joined a new gp practice and met with the compliance manager for the first time to discuss my needs. She told me autism is not disabling and that my condition is a choice i made. How am I supposed to process this? Is this appropriate behaviour?
Hi soboiceland
I am sad to learn of your experience.
I imagine that discussing your needs at the new practice might have been in respect of reasonable adjustments for you in the service and care the gp surgery provides.
To be told one that autism is not disabling and that one makes a choice about it personally would be for me deeply upsetting - and realistically one that although I know the truth about from lived experience and personal study of the evidence base still would "gaslight" me. To answer the direct question as to whether the person's behaviour to you as you describe it was appropriate - I think no.
Ironically, perhaps, the compliance manager is the very person one might expect to understand and ensure the relevant guidelines and regulations are followed in such situations.
Were it I (and I felt up to the task) I (as other good people have wrote on this thread) also would complain. The reasons being: for myself in terms of the need for fair access and understanding in context over my health: to reduce the risk of other people who might also experience such problems as these; and also to help the person who seems to have problems or ignorance in understanding autism.
If I didn't feel up to the task I personally would seek help in how to complain from a trusted source or means - bearing in mind that I find conflict a tricky thing to negotiate and also have a long standing experience of adverse reactions to me (perhaps because of my autism) that make this a hard thing for me to do. It is perhaps a necessary one.
A long answer but I hope this finds you well.
best wishes - Phased.
I've never heard of a compliance manager, I'd complain to the health trust and find another GP
I filled in a Patchs request for an update from my surgery on my autism assessment, and the reply said I needed an appointment but there were none available, so try later. Our GP provision in this country has sadly collapsed into uselessness.
I'm not impressed with my new doctors office I asked if a new medication and was safe to take with magnesium only to be told "there's no reason to take magnesium" Inna really know it all tone.
Where as my last doctor said it has no medical proof but try it
It works for me. And tbh I. Guess I most definitely have a defiancy due to a bad diet due to not having funds for a good diet.
Also I was told oh you need a 6 month review that's when we expwct to see consistent change in your condition but because I need a sick note that became a 3 month review ita almost as if my new doctor doesn't like me.
She said what? It is literally classed as a disability and is the way your brain works, not a choice. That is wildly inappropriate for her to have said and completely false information. I would put in a complaint. Or find another new GP practice. Or both. That is not ok.
That certainly doesn't sound appropriate to me! I've no idea if this 'compliance manager' is a medical professional, but have to suspect this is their personal opinion rather than actual knowledge.