Newly diagnosed ASD – Should I report change for Daily Living? PIP England

The shutdown and need to sleep afterwards you would probably need to be able to get a psychologist to link that to Psychological Distress, rather than the need to recharge 

You have described being able to engage with support, not that you don't engage at all, not going without your mum is saying you do go with her support, I think for the next up they would be looking for evidence you don't engage around other people regardless of support being there

I think they would likely look at it that you have that support already and so therefore don't need money to gain that support. 

I don't think they'd count needing to sleep as overwhelming psychological distress unfortunately. I think they'd be expecting visible meltdowns.

Your assessment report would be good evidence but you'd probably need more than that I think.

It is really hard to get pip for autism.

Thanks for the responses.

Just to clarify, I scored 4 points for engaging previously, but I cannot attend appointments alone, cancel if my mother cannot attend, and would stop attending entirely without her. After appointments I shut down and sleep for hours.

Would this meet 9d (overwhelming psychological distress), or do tribunals usually expect panic attacks or visible meltdowns? I attempted a training course recently but suffered a panic attack and burn out. My report mentions this and high camouflaging and the effects.

Also is my assessment report good evidence? 

Unfortunately if you can engage they give no points for communication, 

From what you've said 

Preparing food - zero points 

Taking nurtion - zero points 

Managing therapy - possibly 1 point

Washing and bathing - zero points 

Managing toilet - zero points 

Dressing and undressing - zero points 

Communication - unfortunately they won't give you points - which is irritating if you go non verbal and can't communicate, they say you can understand 

Reading - zee points 

Making budgeting - do you handle your own budgeting if not have much support do you need?

Where you got four points already engaging with others people - does engaging with others cause 

Cannot engage with other people due to such

engagement causing either –

(i) overwhelming psychological distress to the

claimant; or

(ii) the claimant to exhibit behaviour which would

result in a substantial risk of harm to the claimant or

another person.

if not you would only get 5 points if 1 point for medication - you need minimum of 8 points 

Personally I’d leave it alone, and mention it when you reapply. Countless stories of people contacting them to notify them of a new condition etc…only for them to lose everything, even if it’s worse than the condition/s they got PIP for. If they can find a way of not paying, they will. I’d leave it personally. 

As Expecto_Patronum said - PIP isn't going to award on Autism diagnosis alone, you can submit it as supporting evidence

As far as I know you'll have to be fully reassessed - so that means your mobility may be reviewed again and you'll have to complete that as before.

Good luck - and probably expect to go through to mandatory reconsideration and tribunal (appeal)

PIP can be hard to get with autism. Unfortunately, the criteria are very specific. You've filled in before so you know what they are. It doesn't take into account areas like not being able to collect prescriptions etc. It very much goes on whether you are capable of taking the medication. 

It is absolutely your decision as to whether to report a change but I'd be surprised if they did award you the PIP based on my own and the experience of others on here.

I would also be slightly wary as I've heard about people that have reported a change like this, have been reassessed and have actually had the money they already received stopped as well. It isn't necessarily just a case of them deciding to up it or just say no change.