• Replies 9 replies
  • Subscribers 81 subscribers
  • Views 209 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Newly diagnosed ASD – Should I report change for Daily Living? PIP England

Hapless

Hi, I’m looking for advice on whether to report a change of circumstances for PIP.

Current award:
Standard Mobility
0 points Daily Living
Award runs July 2024 – October 2027

Background: I originally scored 4 points for engaging socially (needs support), but was refused Daily Living overall. I took it to tribunal. A few days before the hearing DWP offered standard Mobility if I dropped the appeal, which I accepted.

I have now received a formal Autism Spectrum Disorder diagnosis (DSM-5 Autism Spectrum Condition – Level 1) through NHS Right to Choose. The assessment included ADOS-2, questionnaires and collateral information from my mother.

Key findings:
AQ10: 9/10
HADS Anxiety: 14 (abnormal range)
CAT-Q: 154 (high camouflaging)
Emotional Quotient low across domains
Lifelong social communication difficulties
Significant anxiety and shutdown after social interaction. 

My functional reality:
I avoid all social contact unless essential (doctor/Jobcentre).
I cannot attend appointments alone.
My mother accompanies me and sometimes speaks on my behalf.

If she cannot attend, I cancel.
After appointments I am extremely drained and sleep for hours.
Without her support I would stop attending entirely.

I can cook and take medication independently, but my mother collects prescriptions and helps monitor side effects.
My situation hasn’t worsened I just now have formal diagnostic evidence that clarifies the severity of my social impairment. I also feel I can explain my difficulties more clearly now.

My question:

Is this sufficient grounds to report a change of circumstances for Daily Living (Activity 9), or would DWP likely argue “no change”.

Thank you.

Parents

  • PIP can be hard to get with autism. Unfortunately, the criteria are very specific. You've filled in before so you know what they are. It doesn't take into account areas like not being able to collect prescriptions etc. It very much goes on whether you are capable of taking the medication. 

    It is absolutely your decision as to whether to report a change but I'd be surprised if they did award you the PIP based on my own and the experience of others on here.

    I would also be slightly wary as I've heard about people that have reported a change like this, have been reassessed and have actually had the money they already received stopped as well. It isn't necessarily just a case of them deciding to up it or just say no change. 

Reply

  • PIP can be hard to get with autism. Unfortunately, the criteria are very specific. You've filled in before so you know what they are. It doesn't take into account areas like not being able to collect prescriptions etc. It very much goes on whether you are capable of taking the medication. 

    It is absolutely your decision as to whether to report a change but I'd be surprised if they did award you the PIP based on my own and the experience of others on here.

    I would also be slightly wary as I've heard about people that have reported a change like this, have been reassessed and have actually had the money they already received stopped as well. It isn't necessarily just a case of them deciding to up it or just say no change. 

Children
No Data