Hi, I’m looking for advice on whether to report a change of circumstances for PIP.
Current award:
Standard Mobility
0 points Daily Living
Award runs July 2024 – October 2027
Background: I originally scored 4 points for engaging socially (needs support), but was refused Daily Living overall. I took it to tribunal. A few days before the hearing DWP offered standard Mobility if I dropped the appeal, which I accepted.
I have now received a formal Autism Spectrum Disorder diagnosis (DSM-5 Autism Spectrum Condition – Level 1) through NHS Right to Choose. The assessment included ADOS-2, questionnaires and collateral information from my mother.
Key findings:
AQ10: 9/10
HADS Anxiety: 14 (abnormal range)
CAT-Q: 154 (high camouflaging)
Emotional Quotient low across domains
Lifelong social communication difficulties
Significant anxiety and shutdown after social interaction.
My functional reality:
I avoid all social contact unless essential (doctor/Jobcentre).
I cannot attend appointments alone.
My mother accompanies me and sometimes speaks on my behalf.
If she cannot attend, I cancel.
After appointments I am extremely drained and sleep for hours.
Without her support I would stop attending entirely.
I can cook and take medication independently, but my mother collects prescriptions and helps monitor side effects.
My situation hasn’t worsened I just now have formal diagnostic evidence that clarifies the severity of my social impairment. I also feel I can explain my difficulties more clearly now.
My question:
Is this sufficient grounds to report a change of circumstances for Daily Living (Activity 9), or would DWP likely argue “no change”.
Thank you.
