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Newly diagnosed ASD – Should I report change for Daily Living? PIP England

Hapless

Hi, I’m looking for advice on whether to report a change of circumstances for PIP.

Current award:
Standard Mobility
0 points Daily Living
Award runs July 2024 – October 2027

Background: I originally scored 4 points for engaging socially (needs support), but was refused Daily Living overall. I took it to tribunal. A few days before the hearing DWP offered standard Mobility if I dropped the appeal, which I accepted.

I have now received a formal Autism Spectrum Disorder diagnosis (DSM-5 Autism Spectrum Condition – Level 1) through NHS Right to Choose. The assessment included ADOS-2, questionnaires and collateral information from my mother.

Key findings:
AQ10: 9/10
HADS Anxiety: 14 (abnormal range)
CAT-Q: 154 (high camouflaging)
Emotional Quotient low across domains
Lifelong social communication difficulties
Significant anxiety and shutdown after social interaction. 

My functional reality:
I avoid all social contact unless essential (doctor/Jobcentre).
I cannot attend appointments alone.
My mother accompanies me and sometimes speaks on my behalf.

If she cannot attend, I cancel.
After appointments I am extremely drained and sleep for hours.
Without her support I would stop attending entirely.

I can cook and take medication independently, but my mother collects prescriptions and helps monitor side effects.
My situation hasn’t worsened I just now have formal diagnostic evidence that clarifies the severity of my social impairment. I also feel I can explain my difficulties more clearly now.

My question:

Is this sufficient grounds to report a change of circumstances for Daily Living (Activity 9), or would DWP likely argue “no change”.

Thank you.

Parents

  • Unfortunately if you can engage they give no points for communication, 

    From what you've said 

    Preparing food - zero points 

    Taking nurtion - zero points 

    Managing therapy - possibly 1 point

    Washing and bathing - zero points 

    Managing toilet - zero points 

    Dressing and undressing - zero points 

    Communication - unfortunately they won't give you points - which is irritating if you go non verbal and can't communicate, they say you can understand 

    Reading - zee points 

    Making budgeting - do you handle your own budgeting if not have much support do you need?

    Where you got four points already engaging with others people - does engaging with others cause 

    Cannot engage with other people due to such

    engagement causing either –

    (i) overwhelming psychological distress to the

    claimant; or

    (ii) the claimant to exhibit behaviour which would

    result in a substantial risk of harm to the claimant or

    another person.

    if not you would only get 5 points if 1 point for medication - you need minimum of 8 points 

Reply

  • Unfortunately if you can engage they give no points for communication, 

    From what you've said 

    Preparing food - zero points 

    Taking nurtion - zero points 

    Managing therapy - possibly 1 point

    Washing and bathing - zero points 

    Managing toilet - zero points 

    Dressing and undressing - zero points 

    Communication - unfortunately they won't give you points - which is irritating if you go non verbal and can't communicate, they say you can understand 

    Reading - zee points 

    Making budgeting - do you handle your own budgeting if not have much support do you need?

    Where you got four points already engaging with others people - does engaging with others cause 

    Cannot engage with other people due to such

    engagement causing either –

    (i) overwhelming psychological distress to the

    claimant; or

    (ii) the claimant to exhibit behaviour which would

    result in a substantial risk of harm to the claimant or

    another person.

    if not you would only get 5 points if 1 point for medication - you need minimum of 8 points 

Children
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