Waiting for diagnosis appointment - Initial assessment indicates autism and very high masking. Life flashing before eyes. Any advice?

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  • You kind of have to be in say the work place because most people dont understand disabilities and dont want to or they understand only what they have seen in another person 

    I find it easier  to mask than to explain everything in detail and most probably not get my words out right like if I try explain sound sensitivity people might think I just get headaches when that's not it at all but it's very hard to explain the overwhelming brain feeling 

    In an ideal world I'd find a work from home job that suited my needs sadly though I need a bigger house so I could have a office lol

  • Tell your assessors that you mask a lot. Do not expect them to divine it from just observing. The paper, 'Self-reported camouflaging behaviours used by autistic adults during everyday social interactions', found here:  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8814950/, might help you categorise and describe your masking behaviours.

  • You are not alone! I was/am mega high-masking too.

  • Hi and welcome to the community!

    The NAS some excellent resources covering the whole process - I think you might find them very helpful :)

    The first bunch that I'll link to directly includes: 

    • What can I do while waiting for an autism assessment?
    • Criteria and tools used in an autism assessment
    • What happens during an autism assessment
    • Professionals involved in an autism assessment

    NAS - Assessment and diagnosis

    There are also separate sets of articles covering before diagnosis and after diagnosis, all available via the diagnosis hub:

    NAS - Diagnosis hub

    Waiting times for assessments vary by NHS trust, but are typically years rather than months. If you're in England and would prefer a shorter waiting time, then you might prefer to ask your GP to re-refer you to an NHS-approved private provider via Right to Choose (RTC):

    NAS - What is Right to Choose

    This website (among others) offers a list of RTC providers for autism assessments:

    ADHD and ASD assessment – Right To Choose