Published on 12, July, 2020
I've been trying to get a post diagnosis assessment, I only found out about them from being on here, I was never offered one when first diagnosed, I was just left to get on with it. I tried the group in North Wales that was supposed to help and they were useless, couldn't get their heads around my very low tech skills, didn't listen, gas lit me on one occaision and ended up being a human google pointing me towards "help" that wasn't even available in Wales. It ended up with two women sat at my kitchen table with a lap top showing two smart phones I could buy from my local tescos and this was after weeks of phone calls and emails around various agencies, I felt like a lost parcel!
On saturday I bumped into some collectors from the local mencap group and asked them if mencap could help me, they assured me that they would, so I emailed them and they can't and tried to send me here and to the above group that are a total waste of time and public money.
Now I feel, well thats that, no help, no interest, all the bodies that are supposed to help with ASC are closed to me apart from these boards. I am able to advocate for myself, so I could write to my Assembly member or MP or both, but can I be bothered? What do I expect them to do? The answer is nothing, the last time I wrote to my assembly member I had no reply at all and my MP did say they'd recieved my email, but the only action that was taken was to pass all my details onto to head office so as they could advertise at me.
Is there anywhere for an intelligent 62 year old woman to get any help?
I've worked in IT for too many years now and have seen various campaigns to help people with technology over that time. Some provided by Banks are notably quite good, as they're invested in making people aware of risks and dangers while using the internet. There used to be an IT training place in town linked to the job centre, not sure if they still exist.
It's one thing to have this training but if it's not inclusive in accessibility terms then it's not useful, as those people are likely to be the most at risk groups when it comes to fraud and worse.
I'll have a look around, see what I can find.