Finally had my assessment yesterday

I don't feel like it went well at all =(

I'm not contact with most of my family for various reasons, and so don't really have anyone thay can corroborate my traits having been there since childhood. Before my assessment I explained this, and gave phone numbers for my uncle (who I'm not sure how helpful he'd be, due to family issues I'm not sure he saw me much as a young kid), and a high school friend. I also spent a few hours writing down notes about all the traits and my struggles that I could think of. I was under the assumption people would have been contact and questions asked, plus my list read beforehand, and so didn't being them in to help me as I maybe should have.

I found it incredibly difficult thinking of a lot of it on the spot, and many of the questions didn't really lead to me discussing some of what was in my initial list. And so because I'd had a poor relationship with somewhat emotionally abusive parents, I was told that "I have autistic traits, but they could have been because of my parents mistreatment and it isn't clear that I have ASD". I waa also basically told that if is been assessed some years ago I'd have been diagnosed with Aspergers, but by today's DSM criteria, unless they get more info from my uncle and friend to prove early childhood traits, I don't get a diagnosis.

I feel very disheartened by this. A lot of my parents mistreatment of me, I feel, was exactly because I showed autistic traits, not the cause of them (such as them getting angry at me for replying words and phrases, or sometimes even sounds I'd heard from others, repeatedly listening to the same songs over and over, spending too much time in my room by myself, or the fact I'd flat out refuse to eat many foods because of their texture.)

I'm not sure what my next steps should be.

Have others struggled in similar ways to me? Or, managed go get a diagbosis despite not having anyone to prove early childhood experiences?

Is it worth me trying to seek out a 2nd opinion, or the fact I'm no contact with family just mean I get the same response?

Because of my troubles explaining myself in a verbal manner, I found it very stressful today and I'm scared also that seeking a 2nd opinion would just result in exactly the same.

Thanks in advance for any advice!

Parents
  • That sounds like a very stressful experience- I’m so sorry. If it’s any comfort I felt a bit like this after my assessment- but I did get the diagnosis. I can relate to your experience with your parents too - I hope you can find healing. 
    At this point I would say to you: wait until you get the results of the assessment before even considering what to do next. Give yourself a time of rest and recovery to recover your sense of peace - do the things right now that will bring you as much comfort as possible - and ‘park’ the rumination and decision making about this who assessment process. Have a holiday from it all and give yourself time to breathe. Your well being is what matters most. X 

Reply
  • That sounds like a very stressful experience- I’m so sorry. If it’s any comfort I felt a bit like this after my assessment- but I did get the diagnosis. I can relate to your experience with your parents too - I hope you can find healing. 
    At this point I would say to you: wait until you get the results of the assessment before even considering what to do next. Give yourself a time of rest and recovery to recover your sense of peace - do the things right now that will bring you as much comfort as possible - and ‘park’ the rumination and decision making about this who assessment process. Have a holiday from it all and give yourself time to breathe. Your well being is what matters most. X 

Children
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