Published on 12, July, 2020
During my autism assessment, the psychiatrist said that although my autism affects many aspects of my life, I was still able to communicate to her well and therefore only had it “mild”. I understand that I have low support needs and that other autistic people have different or more extreme struggles and need more support, but I was masking a lot in the assessment in order to answer the questions as clearly as possible, which completely exhausted me and impacted how I felt over the next couple of days. As Keedie said in the TV show “A kind of spark”, her autism only seems mild because ‘we make it so, at a great personal cost’. Autism has a huge impact on my life, even if no one else can see it, and especially if I’m purposefully changing my behaviour to fit in or adapt to other people. Just because it seems mild to you doesn’t mean it actually is to me. I feel like this is why the terms “high functioning” and “low functioning” are being used less in favour of “support needs” which I feel is more accurate and less diminishing of autistic people’s struggles. I’d be interested to know other people’s opinions too as I know some people don’t mind the word “mild”!
I don't know what I think yet. I agree with all that you say. "mild" means not bad, but I'm struggling. Apart from my wife who does make some allowances, it is always up to me to bridge the gap and it is so tiring. There will hopefully be better terminology one day.
I'd not heard of "A Kind of Spark" before. I've just looked it up. I'll recommend that my wife and I watch it together. Thanks!
Mark (formerly Spikey) said:Apart from my wife who does make some allowances, it is always up to me to bridge the gap and it is so tiring
I don't think anything changes even some years into a diagnosis. Autism is, a communication difference with the majority. This is not going to change. I find adjustments tend to be regarding the sensory aspect, which is great, but it doesn't change the way people communicate at a fundamental level with you. I don't expect anyone to change and it'd be wrong to do so.
What I find has made life easier is accepting there's this difference for whatever reason and making allowances for this. For myself and the other person. It's nothing personal, it's a difference between two people. It doesnt mean the communication is easier or less tiring but it leads to feeling calmer in myself.