Tough day

I have a really had a tough day today. I see a neurologist as I have issues with my nervous system. I waited like 16 months for this appointment and hospital picked me up at like 8 am to take me and the journey took 2hrs 20 mins and I was finding it so difficult in the car. Arrived at the hospital to the floor and be told I had been taken to the wrong hospital. It was an error in the system it was neither our mistakes. I went back to get patient transport talking to my dad and I was now basically crying on the phone. I could be waiting over 1hrs 30 mins for another 2hrs 20 home with no appointment. My nerves were so bad and lost control uttering everything and I am moderate for sensory level 2. Basically I felt I needed to go on the floor and ground myself for proprioceptive feedback.

 I couldn't do in the hospital. I needed the transport but I had to exit with my health and go on the train as I was couldn't wait. Now I cannot move my spine has gone.

My question is you have sensory issues and you need to ground yourself and your outside what you can you do, people were looking at me taking up three seats on the train lying down. Surely there has got to be some better way.

Parents
  • Hi everyone. I have just returned to this post to update today some information about grounding. I mentioned that I saw a sensory specialist in 2023. I had to shift through quite a lot of emails to string some information that we covered on grounding  which I wanted to share with you. It can cover lying on the floor as well. Grounding work is called proprioceptive feedback. RO is the initials in my signature. Obviously  some of these cannot be done outside, but they can be done when you get to a safer place.

    RO was supported to engage with a brief mind/body breathing exercise. RO was observed to engage with the activity whilst sitting down and she reported liking the brief time when she felt the rise and fall of her chest. RO was encouraged to practice and advised of the benefits or repeated practice.

    Strategies include using different body postures such as rolling body up with head to chest (foetal position), walking and using large arm movements.

    Proprioceptive input can be calming, energising, and organizing.

    Other ideas include sucking thick smoothie through a straw

    What do the different sensory activities do?

    Hand weights, you can use these whilst sitting and also in the exercise below;

    Stand upright holding the weights above your head, slowly bend forward as far as you can with straining and then slowly raise the hands up and then lower to rest by your sides

    Squidgy poppet & other handheld items

    Blowing bubbles uses proprioception - Other ideas include sucking thick smoothie through a straw

    Shutting eyes and practicing standing on either leg with eye closed – this helps with gravitational insecurity which is connected to your balance

    Try completing these exercises in the morning to help achieve a grounding, calming effect. If you feel that you need them later in the day, do them again!

     

    Important points: Slow, linear and rhythmical movements are calming, and fast, rotary and erratic movements are excitatory

    Discussed coping mechanisms with what to do if she starts to feel overwhelmed.:

    • To go to a bedroom upstairs and use deep breathing, rocking and body tapping as ways to calm, to try this every hour may be helpful.
    • RO is also open to considering walking as an option of a grounding/calming strategy. This was discussed within the boundaries of walking to nearby park.
    • Proprioception (awareness of body position and movement)

    Stand up and put your feet firmly on the ground

    Move about: stretch, stamp your feet, jump up and down, dance, run on the spot, rub your arms and legs, clap your hands, walk, remind yourself where you are right now.

    Try to think about different things, almost like playing mental games, for example:  count backwards in 7s from 100, think of 10 different animals, 10 blue things, one animal or country for each letter of the alphabet, say the alphabet slowly, say the alphabet backwards etc.

    Carry a grounding object with you.  Some people carry a stone or other small object, perhaps which has personal meaning, to comfort and touch when you need to

    Ask yourself questions in order to bring yourself into the present. Write down your own questions, for example: 

    • Where am I, right now?
    • What day is it?
    • What year is it?
    • How old am I?
    • Where do I live?
Reply
  • Hi everyone. I have just returned to this post to update today some information about grounding. I mentioned that I saw a sensory specialist in 2023. I had to shift through quite a lot of emails to string some information that we covered on grounding  which I wanted to share with you. It can cover lying on the floor as well. Grounding work is called proprioceptive feedback. RO is the initials in my signature. Obviously  some of these cannot be done outside, but they can be done when you get to a safer place.

    RO was supported to engage with a brief mind/body breathing exercise. RO was observed to engage with the activity whilst sitting down and she reported liking the brief time when she felt the rise and fall of her chest. RO was encouraged to practice and advised of the benefits or repeated practice.

    Strategies include using different body postures such as rolling body up with head to chest (foetal position), walking and using large arm movements.

    Proprioceptive input can be calming, energising, and organizing.

    Other ideas include sucking thick smoothie through a straw

    What do the different sensory activities do?

    Hand weights, you can use these whilst sitting and also in the exercise below;

    Stand upright holding the weights above your head, slowly bend forward as far as you can with straining and then slowly raise the hands up and then lower to rest by your sides

    Squidgy poppet & other handheld items

    Blowing bubbles uses proprioception - Other ideas include sucking thick smoothie through a straw

    Shutting eyes and practicing standing on either leg with eye closed – this helps with gravitational insecurity which is connected to your balance

    Try completing these exercises in the morning to help achieve a grounding, calming effect. If you feel that you need them later in the day, do them again!

     

    Important points: Slow, linear and rhythmical movements are calming, and fast, rotary and erratic movements are excitatory

    Discussed coping mechanisms with what to do if she starts to feel overwhelmed.:

    • To go to a bedroom upstairs and use deep breathing, rocking and body tapping as ways to calm, to try this every hour may be helpful.
    • RO is also open to considering walking as an option of a grounding/calming strategy. This was discussed within the boundaries of walking to nearby park.
    • Proprioception (awareness of body position and movement)

    Stand up and put your feet firmly on the ground

    Move about: stretch, stamp your feet, jump up and down, dance, run on the spot, rub your arms and legs, clap your hands, walk, remind yourself where you are right now.

    Try to think about different things, almost like playing mental games, for example:  count backwards in 7s from 100, think of 10 different animals, 10 blue things, one animal or country for each letter of the alphabet, say the alphabet slowly, say the alphabet backwards etc.

    Carry a grounding object with you.  Some people carry a stone or other small object, perhaps which has personal meaning, to comfort and touch when you need to

    Ask yourself questions in order to bring yourself into the present. Write down your own questions, for example: 

    • Where am I, right now?
    • What day is it?
    • What year is it?
    • How old am I?
    • Where do I live?
Children
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