Assessment with or without parental involvement.

Hi, Well after two and a half years my name has come to the top of the list for an NHS autism assessment at an adult assessment unit. I am 56 years old.

After wanting this for so long it is now causing me quite a lot of anxiety and imposter syndrome.

An email arrived yesterday asking for an adult informant who has known me since a child. The only person is my mother who is 77 years old, our relationship has been quite turbulent over the years, some of my childhood was spent living with relatives when my mother was ‘sectioned’ on quite a few occasions. Obviously that’s not her fault in any way.

My mothers understanding of autism is quite limited, I’ve tried to explain how every autistic person is different. I get comments off, “ you can hold a conversation, I’ve seen you.” I’ve spoken with my wife and she feels and I do that she will tell the assessor that I was quite normal and nothing to see here. School reports just say that I was quiet. 
I just don’t know which way to go, the email does say that the assessment can be carried out without an informant, I suppose I’m feeling guilt in case she does have something to say but then again I don’t want my assessment scuppered, I didn’t have delayed speech or walking. It wasn’t until I started school that I knew I was different. Any advice would be appreciated.

Parents
  • Any advice would be appreciated.

    As an autist.....surely doing it by yourself is the "natural" and best way forward (in any event for a 56 yr old).....but especially in your case because you fear a "scuppering" may unfold if your mum is involved.  I wish you well with this, and I hope that you can keep a lid on the understandable anxiety you are now feeling.

  • I can always rely on your good sense, well most of the time! Yes I do most things on my own,  this should be no different. I’m the only person who knows what goes on inside my head.

Reply
  • I can always rely on your good sense, well most of the time! Yes I do most things on my own,  this should be no different. I’m the only person who knows what goes on inside my head.

Children
No Data