Published on 12, July, 2020
Hi, Well after two and a half years my name has come to the top of the list for an NHS autism assessment at an adult assessment unit. I am 56 years old.
After wanting this for so long it is now causing me quite a lot of anxiety and imposter syndrome.
An email arrived yesterday asking for an adult informant who has known me since a child. The only person is my mother who is 77 years old, our relationship has been quite turbulent over the years, some of my childhood was spent living with relatives when my mother was ‘sectioned’ on quite a few occasions. Obviously that’s not her fault in any way.
My mothers understanding of autism is quite limited, I’ve tried to explain how every autistic person is different. I get comments off, “ you can hold a conversation, I’ve seen you.” I’ve spoken with my wife and she feels and I do that she will tell the assessor that I was quite normal and nothing to see here. School reports just say that I was quiet. I just don’t know which way to go, the email does say that the assessment can be carried out without an informant, I suppose I’m feeling guilt in case she does have something to say but then again I don’t want my assessment scuppered, I didn’t have delayed speech or walking. It wasn’t until I started school that I knew I was different. Any advice would be appreciated.
I don’t Even understand why they need a family members involved for an adult. There are many families where more than 1 person is autistic. For them stimming or sticking to the routine or sensitivities are nothing weird. Have you ever noticed anything weird about your son? “No! He is perfectly normal like me”
My late father had meltdowns on a daily basis, nether parents ever socialised with other people, often wonder if my mothers poor mental health is undiagnosed autism, my sons are normal like me, just as strange as me.
Roy said:often wonder if my mothers poor mental health is undiagnosed autism
As I've said before, I've also wondered about this with regard to my mother but she also fitted schizoaffective disorder and lately I think maybe she had both as autism alone doesn't cover enough.
If I had to choose one it would be SD.