Published on 12, July, 2020
Hi,
I am 27,in the UK, currently on the waiting list for an assessment after having an ASD screening from an NHS physiatrist, I don't know how long the wait is going to be but for now I am struggling bad with my mental health and this has now resulted in my contract at work being terminated because I have had to take so much time off due to this. I really struggle with socialising and emotions and sleep, which leads to a difficult work life, being exhausted and burnt out constantly. Now I have no job and am not in the right place mentally to look for a new one or hold onto one at the moment. I have tried to reach out to many services for support and have yet to receive any, most professionals are brushing me off and telling me to learn to live with it.
Does anyone have any ideas of some decent support networks, people to contact, services, resources, etc?
Also how do you survive without a job, can you get DLA, UC, PIP?
still waiting for assessment/diagnosis
Any help would be appreciated.
Thank you
Sorry mate, but you are out of luck. There is no support networks for adults with ASD.
Try to get access to Clinical Partners via the Right to Choose scheme.
https://www.clinical-partners.co.uk/nhs-services/right-to-choose
Be prepared to fight for it. The waiting list is some months, but it is free and it's better than the 10 years long NHS list.
Afterwards, you are screwed. There is no support available. You can ask for "workplace adjustments" like WFH, but you will need an official diagnosis for it. I would advise to do that AFTER you pass probation.
You can ask the NHS for help, but they only provide useless CBT with untrained operators with no idea about ASD. The best you can get is some happy pills from your GP. He will be happy to prescribe some. Do not be surprised if they turn you into an obese, impotent, smiling zombie. They are also extremely addictive.
Sorry if I do not sugar-coat it. I have been diagnosed one year ago, and I could not find any meaningful help. That's your life now.
yeah i agree, in the past i have been given talking therapies, wasn't helpful, been on antidepressants for years, doesn't help, only in the past 2 years i realised i may be autistic and thats why nothing is helping, im now on the waiting list for official assessment, but like you said the list is ridiculous. Thank you so much for your reply, im sorry that you're unable to get the support you need aswell
I’m in the same situation at the moment and today had my assessment, do you have children? And also I would call up mind therapeutic who will assist you for right to choose, call your doctor after you have spoken to them and say you want to go through them, they will have you fill out an AQ10 form which you take back to your fldoctors and then forward on the paper work from mind therapeutic. I did all this 6 weeks ago and have now had the assessment!!!!! I was in the waiting list like yourself. If I can help in any other way I will!! If work have terminated your contract go to your local citizens advice or universal credit office and explain the situation. They shoud be able to help you financially as your contract was terminated and you didn’t walk. If I’m wrong on any of this please corect me anyone who knows more. But right to choose I have done it’s fast and free!!! In the mean time look after yourself