A ''Script'' for asking the GP for autism referal.

Hello,

I have never felt like I have ''masked'' my behaviour before, and instead have just become confused/fustrated when people don't like my behaviour or understand my thought processes. I equally don't understand their behaviour or thought processes. As I have ''grown up'' and am starting to enter the work force, I am finding it increasingly difficult to deal with social communication and routines. I have felt an increasing pressure to ''mask'' my behaviour and follow scripts to help with everyday conversation. The diagnosis I have of OCD doesn't accurately reflect all the other difficulties in social communication and sensory difficulties that I have.

However, It gives me anxiety I feel in my chest every time I think about going to the GP to start the conversation about an autism referal. I am worried because my main problem is that I simply don't know if I'm autistic or not - and I need to start that conversation in order to get the best support as I attempt to become more independant. I am worried that my GP will just dismiss me without allowing a discussion to occur, which is what happened last time I brought up the subject to my psychologist when I was 13. I am worried even if I get a diagnosis that I will be seen as ''making it up'' or ''not really autistic,'' even though all the difficulties I face are accurate to my experience.

My main reason for wanting to seek a diagnosis now is because:

- Despite not feeling that I need to ''mask'' (change) my behaviour, entering the ''wider world'' and conversing with more people I am increasingly feeling pressure to change the way I naturally behave.

- I have often been critised by being told that ''the way I walk and the way my face looks'' is wrong (yet they wouldn't tell me what I need to do in order to do it right.) I have also been told my volume of voice is ''too loud'' and ''people think [I] am shouting'' - something I did change because they told me what the issue was and what I needed to do (''lower your volume and vary it as needed.'') I have been critised for the way I move my body (rocking myself, walking around in circles) and for the way I converse (always about the same range of topics, and a difficulty to engage in topics that don't interest me - even if I think I have appropriately conversed in others' interests.)

- I often misinterpret what other people have said, and I struggle to understand when they try to tell me what it is they meant. Similarly, people tell me that the choice of words that I use don't accuratly represent what I am trying to tell them, even though it makes sense to me and I struggle to choose new words so that they understand me.

-- Yet, I often understand clearly what people who are autistic are trying to tell me and they seem to understand me as well.

--- It is thought the breakdown in communication between autistic and non-autistic is the difference in neurotype. If I am non-autistic, then that would bring the question of why I am able to easily converse with autistic people and struggle with basic communication with non-autistic people.

- I struggle with change to routines and adapting to fit the new routine. This, I feel, is what is making it difficult for me to get a job and also be successful at the job.

- I struggle with understanding the intricacies of different rules, and become very confused if the rules aren't clearly explained. This is what  makes it hard to be successful at a job, because people at the job tell me to ''use my intuition'' but yet, when I use my ''intuition'' the people tell me that I am doing the job wrong. However, they won't tell me what the right thing to do is and tell me it's ''intuitive'' (clearly not?)

- People often tell me that I have said something in a rude or aggressive way, but I haven't intended to behave in such a manner and I did not think the way I was behaving was rude or aggressive. I thought I was behaving similarly to those around me, and I don't know what I am doing different or why people are interpreting my behaviour as different.

- Despite believing that I am looking after myself well, my parents often comment on my inability to look after myself in regards to preparing adequate food and keeping myself clean/tidy.

- There are then sensory difficulties in regards to different sounds, smells and textures but I just try really hard to avoid these things that cause sensory difficulties.

I was wondering if anybody can help me with a script I can use with the GP to help with asserting (politely) that I would like a diagnosis referal.

Thank-you,

Jayde.

Parents
  • i just asked for one. i probably mumbled and botched it but thats ok.... if you script it and do it perfect and eloquent, then they will probably say you sound well spoken enough to not need it right?

    but if you just ask something like "id like a referal for a asd assessment" then thats enough for them to question why and ask questions about your life such as asking for traits, they basically do all the work after your basic to the point request. i think i did the online thingy so i wrote the request on the ask my gp thing then they rang me so thats probably made it easier as they got the point of it as they rang me and i didnt need to explain just answer questions they ask. its more simple than you think, but its ok if you stumble and mumble around as they wouldnt expect a person who potentially has asd to be well spoken

Reply
  • i just asked for one. i probably mumbled and botched it but thats ok.... if you script it and do it perfect and eloquent, then they will probably say you sound well spoken enough to not need it right?

    but if you just ask something like "id like a referal for a asd assessment" then thats enough for them to question why and ask questions about your life such as asking for traits, they basically do all the work after your basic to the point request. i think i did the online thingy so i wrote the request on the ask my gp thing then they rang me so thats probably made it easier as they got the point of it as they rang me and i didnt need to explain just answer questions they ask. its more simple than you think, but its ok if you stumble and mumble around as they wouldnt expect a person who potentially has asd to be well spoken

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