What aspects of daily life do you find most challenging?

Hi all,

Hi all,

I was diagnosed with autism 3 years ago as a 30 year old man and at that time I had a decent quality of life, a good job, a great social life and wonderful home life. However even with this life I ended up with quite severe depression which after a while resulted me in receiving the diagnosis of having autism. It’s obvious now that throughout my life I was continuously masking just to get through each day and to survive so to speak.

Now that I’m more aware about myself and allow myself to be truly me, I find it extremely difficult to be happy sometimes which may be the case for some of you also. I particularly find it difficult in gaining employment once again which is more suitable to my needs and also being social making friends who accept me for how I am and for who I am.

With this in mind I’m genuinely curious to see what is the biggest issue you find or struggle with as an autistic individual?

Thank you for taking to the time look at this and hoping your having a good day!

  • There's a new interactive screen at my doctors which you use to sign yourself in. It asks your age, name and date of birth, and which doctor you're seeing. All common knowledge to me but my mind goes blank when I'm there and I get confused and anxious when trying to use it.

  • Socialising. I have to mask myself around people a lot, especially in my full time job. Throughout most of my education, I have had people say I am too quiet, not loud enough, needing to get out of my comfort zone, needing to look past my disability etc. These comments make me feel like something is wrong with me and make me feel inadequate about myself.

    I have clinical depression on top of this Haswell which doesn't make things any easier.

    As of recently, I have had a family friend/colleague say these things and now I feel like I want to off myself because no matter how hard I try, I can never mould myself into the image people expect for me. Comments like this take me back to childhood traumas and I also have trust issues due to this. I have even considered looking for another job so I don't have to deal with this person. 

  • Hang in there. I hope things are better for you soon Pray tone1

  • It feels like everything is a challenge in my daily life of late. I can't interact with others, I rarely go out, I find it hard to sleep hence I'm awake now... I have no friends, no job, I'm severely depressed... Life isn't the challenge, I am the challenge, and I have no idea what to do about it.

  • Technology and feel embarrassed having to ask for help. I live in fear that I will need to download and use an App. 

    You even have to use it to book in at the doctor's surgery. First time I went it took me ages to see where it was. The second time I got confused putting in the date of birth and ended up talking to the machine. Then I thought it came up with the wrong name, but it was who I was going to see. They also have a machine to log in visitors at my son's school. Not only is it the technology, but when you are doing things out of your comfort zone the last thing I want to do is draw attention to myself. (At least you can wear a mask at the surgery).

  • I struggle with depression too even though I'm on medications for it. I feel like for ME it's been mostly due to feeling inert. I think it may be autistic burnout in my case. So I allow myself the space to SLEEP without judgement of how long or when and I stick to comforts like favorite foods, favorite TV shows that aren't emotionally challenging like comedies, Gerry Anderson sci-fi and Star Trek TOS. I can also watch Sirs Ian and Derek along with the menagerie of silly persons on Vicious on a loop with Dawn French in Vicar of Dibley on standby. 
    If your depression is untreated I hope you'll seek support. I'm so glad I did.Vulcan tone2

  • I was so worried about my son yesterday - it was his first day back at school and he was so unhappy about it. When my wife got home, she told me that he cried in the morning when he was at school. Thankfully, he seemed much happier in the evening.

  • My goodness. My hardest thing to cope with now is bathing and hygiene. I shower if I have a doctor or tattoo appointment because I'm not a barbarian but at home? I can be stinky McStinksalot.

  • They seem to be designed by people with no sense of logic, probably the same people who design traffic junctions. Wink The absolute worst self service machines are the Post Office ones, they ask ambiguous or gnomic questions that I have no idea how to answer.

  • I seem to manage things ok but just ok, work, socially, day to day stuff. My biggest challenge is to get my partner to accept my struggles and to help my youngest son manage himself in order to prepare him for later life. He had a complete meltdown as it was his first day back at school today. He was in such a state and I just have to hand him over, I then spend the rest of the day constantly going over it in my head. I am over empathetic as well so I truly feel his pain.

  • Self service checkouts are over complicated in my opinion... At my store you can one item and it errors out and then I have to wait for an assistant to come and clear the error. Since my disability I try to do online shopping, it's easier.

  • That can be a problem...

  • Finding meaning in being alive is my biggest challenge 

    I recently saw the reality that I matter less than I had previously thought.  I have used my imagination as my reality for so long.  Now I am 58. 
    I am seeing my relative unimportance and I feel embarrassed that I have lived my entire life in my head in delusions of grandeur. 

  • the nuts and bolts, hygiene, communicating needs effectively, confidently, missing social cues while in a queue, squirrels.

  • Work is my biggest struggle, it saps most of my energey. Trying to remember everything, try not to screw up, its a quite technical job and I can be clumsey. Trying desperatly not to screw up so my boss sees that I am just ok at my job. Used to be better until 2020 and my massive burn out, still not recovered. Thankfully in a year or so we are relocation 'up north' for a simpler life and I hope just working in a shop or something will be much better for me.

  • Autistic people are more likely to be LGBT than Neurotypical people are.

  • It's a personal estimate. I thought about the few dozen trans people I know, and how many of them are autistic vs non-autistic or unknown.

  • Thanks Roy - though I'm not sure I can work either tbh! - taking it day by day. Whether it's sustainable, I don't know. Past experience suggests not. 

    But I'll try.

  • Obtaining decent quality Uranium.

    Fortunately, I have no need of the stuff so it's no big deal for me..