Parental Bias and Autism

We often get posts on the form asking for advice with autistic children. And I can't help but notice the requests overwhelmingly relate to low functioning autistic children. As someone who is quite high functioning and had a very disrupted and turbulent childhood I can guarantee you it's not because high functioning autistic children don't have just as many issues. Nore is it that high functioning autistic children are particularly rare. We recently had a discussion on this point in another thread and figures I dug up indicated around 40%+ of autistic children being diagnosed these days are of average or above average intelligence.

So the question I'm asking is this. Why don't those parents come looking for help? Is it because the main stream schooling and support systems are so much better at supporting high functioning children? I doubt it. Is it because they tend to think of their child’s behaviour as 'naughty' not 'autistic?' Is it maybe they don't accept or agree with their child’s diagnosis? What do you think it is?

More to the point:

  1. How can high functioning autistic children get the help they need if their own parents won't seek it on their behalf?
  2. How can we raise awareness of the needs of high functioning children among parents and professionals?

Edit ps: For the simplification of this entire discussion and to avoid a long drawnout arguments over semantics. Instead of high functioning we shall say high IQ meaning an IQ of 85+ and instead of low functioning we will say low IQ meaning an IQ less than 85. As measured on a standard clinically approved IQ test.

Parents
  • The nomenclature surrounding autism is in great need of some improved clarity. To me, there appear to be three major groups among autists - 1) those who function, or appear to, in neurotypical society, at whatever  resultant cost this may have in exhaustion and mental ill health, 2) those who cannot function effectively in neurotypical society due to severe anxiety, inability to vocalise etc., but who are of average or above average intelligence, and 3) those who cannot function effectively in neurotypical society due to the interplay of intellectual disability and autism. To pretend that these three groups, and I know it is an oversimplification, have the same abilities or support needs is simply futile.

  • To pretend that these three groups, and I know it is an oversimplification, have the same abilities or support needs is simply futile.

    I agree, and I am particulary concerned by the policing of terms, as demonstrated here.

    The nomenclature surrounding autism is in great need of some improved clarity

    Indeed.

    Well put but a concensus on terminology needs to be reached, which may be impossible.

Reply
  • To pretend that these three groups, and I know it is an oversimplification, have the same abilities or support needs is simply futile.

    I agree, and I am particulary concerned by the policing of terms, as demonstrated here.

    The nomenclature surrounding autism is in great need of some improved clarity

    Indeed.

    Well put but a concensus on terminology needs to be reached, which may be impossible.

Children
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