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Advice - ASD assessment

NAS89617
11 months ago

Hi all, 

I had my ASD assessment this morning and was told that I am not autistic because I only meet 2 out of the 3 criteria for a diagnosis. I originally scored 45 out of 50 for the AQ50 and I really felt like I was going to be diagnosed wih ASD. 

The one that I failed at was to do with habits, routines and dealing with change etc. At the time of the assessment I didn't really think that much into this side of things because I have always been more focused on the socialisation side of ASD. 

I don't really like to do anything other than stay at home and don't have any special interests other than films/tv so I never really thought about whether I have routines or habits. There are little things I like to do and I struggle with ambiguous instructions but other than that, I can't think of any other routine type things. 

I was just wondering if anyone has had a similar issue or any advice? I don't know whether I should contact psychiatry UK to just let them know of the things I have thought about now but I don't want them to think I am making it up because I failed the examination. Sorry for the long post. 

Parents
  • 11 months ago

    Some people trust that assessing clinicians will be omniscient, and come to the right conclusion. I am not so trusting and I looked through the autism diagnosis manuals and made damn sure that I ticked all the relevant boxes. I do not like leaving things to chance. Yes, I also am not particularly attached to routines, largely because I have realised that fulfilling routines gives far less advantages than the inevitable disruption of routines causes disadvantages. So, though routines suggest themselves to me all the time, I stamp on them ruthlessly. I think that for a diagnosis you have to show at least one of either unusual focus on restricted interests (special interests), or, repetitive behaviours (routines, stimming and sensory difficulties). If you did not show evidence of either of these types of behaviour, this will be why you were not diagnosed. The diagnostic manuals impose a tick-box scenario on assessors and if you miss a tick the clinician is obliged to withhold a diagnosis. It might be worth writing to Psych UK, though you might have to pay for a clinician to go over your additional material.

Reply
  • 11 months ago

    Some people trust that assessing clinicians will be omniscient, and come to the right conclusion. I am not so trusting and I looked through the autism diagnosis manuals and made damn sure that I ticked all the relevant boxes. I do not like leaving things to chance. Yes, I also am not particularly attached to routines, largely because I have realised that fulfilling routines gives far less advantages than the inevitable disruption of routines causes disadvantages. So, though routines suggest themselves to me all the time, I stamp on them ruthlessly. I think that for a diagnosis you have to show at least one of either unusual focus on restricted interests (special interests), or, repetitive behaviours (routines, stimming and sensory difficulties). If you did not show evidence of either of these types of behaviour, this will be why you were not diagnosed. The diagnostic manuals impose a tick-box scenario on assessors and if you miss a tick the clinician is obliged to withhold a diagnosis. It might be worth writing to Psych UK, though you might have to pay for a clinician to go over your additional material.

Children
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