Autism video assessment

My son had a video autism assessment today with Psychiatry UK through NHS Right To Choose and the people assessing him said he does have a lot of autistic traits but not enough to "cross the threshold". The appointment lasted for less than 30 minutes. Does anyone know whether their decision can be challenged or whether he is entitled to a second opinion elsewhere. Advice please.

  • you would have to go for a private assessment which would be a few hours, they will be trained professionals. 

  • Thank you. I did look for the website and found it unavailable, but have come across Shropshire Disability Network which looks to have the contact details on. 

  • I was going to share the link to her website with you, but it looks like it is down at the moment. I can send you her email address later if you need it. Also, feel free to ask me any questions you may have, either publicly or privately.

  • Thank you for that information, I will look into that. He would definitely like a 2nd opinion.

  • When I had my private assessment with Shropshire Autonomy last year, the information gathering (pre-assessment) video call lasted between 5 and 6 hours. I then had a further 30-40 mins with an NHS psychiatrist for my formal medical assessment. Half an hour seems way too short in my opinion, especially for an adult. Shropshire Autonomy generally works out cheaper than some of the other private diagnosis routes, as most of the leg-work is done at the pre-assessment stage by Sara Heath, who is non-medical autism specialist. Additionally, she will only refer you the NHS psychiatrist if she is confident that there is sufficient evidence for you to actually gain a medical diagnosis. If you are wanting a second opinion and have to go private, I have no hesitation in recommending Sara at Shropshire Autonomy as a possible route for you. Good luck to you and your son, whatever you decide.  

  • Thank you for your reply, yes we feel that it was shoddy work. My son is waiting for their letter to see if there is a way to get a 2nd opinion.

  • Thank you for your reply. He doesn't feel that they spent long enough asking the right type of questions to be able to come to the right decision on a diagnosis or not. Maybe I should have mentioned that I'm autistic, I was at the Lorna Wing Centre for a day and my assessment took a few hours, then I was given my diagnosis. 

  • One session lasting less than 30 minutes is pretty shoddy work. It might not mean their conclusion is wrong, but that's not the standard. 

  • The nature of autism is that is has a range of traits, behaviours and sensitivities that are at varying levels for every autist, and the way the diagnosis works is you get scored on these depending on how bad they are for you.

    There is a calculation performed (I assume each category gets a weighting depending on how much of an issue that behaviour etc is) and the level for it is multiplied by the weighting - then all the main categories are added up and a number reached.

    If you reach the threshold for it to be disabling for you then you are given the diagnosis, but if it is not serious enough, you don't get that label as an autist - effectively it works out if it is bad enough for you to be considered disabled.

    It sounds like your son doesn't qualifiy as badly effected enough to be given the diagnosis.

    With the waiting lists of 3-4 years min most locations for NHS feferrals then I think you will have a long wait for a second opinion. I don't think they will approve of a second opinion from a private clinic however - they have done their duty and if you don't like the result then your only recourse is the slow procee I suspect.

    Alternatively you can go privately yourself, but be prepared that they may come to the same conclusion so you will have waster thousands of pounds.