Published on 12, July, 2020
So, if you aren't all bored with me banging on about this topic yet, here's another call for opinion.
In my quest to secure some proper support to get through my own GPs doors nevermind survive hospital treatment, it seems I have secured a meeting with the Comissioners for Coventry and Warwickshirs Partnership Trust to talk about improving the offer for autistic people. (Currently this sucks, simply because no one can wrap their heads around the issues). I'm not imagininging this is a local problem at all. The problems are likely the same nationwide.
In this meeting, I'll be banging on about my own barriers, of course, but this isn't just my issue, is it? I am no more than just one example, or case study, here.
So, what do you want your local trust to offer you to better access your health care? I'll take all your ideas forward with me to that meeting.
This just occurred to me too and I think some practices do it but it would help to be able to book a double appointment when you do actually make it to the gp- so that there is plenty of time to address all issues.
Usually I go for a 15 mins appointments. I write what to say and try to memorize it.
I have tried writing things down but most of the time I then still feel too selfconcious to say them and end up not saying what I should. I also think my desire to please people (and saying what I think people want to hear is one of my masking strategies) gets in the way and I often downplay my problems...