Accessing Health Care

So, if you aren't all bored with me banging on about this topic yet, here's another call for opinion.

In my quest to secure some proper support to get through my own GPs doors nevermind survive hospital treatment, it seems I have secured a meeting with the Comissioners for Coventry and Warwickshirs Partnership Trust to talk about improving the offer for autistic people. (Currently this sucks, simply because no one can wrap their heads around the issues). I'm not imagininging this is a local problem at all. The problems are likely the same nationwide.

In this meeting, I'll be banging on about my own barriers, of course, but this isn't just my issue, is it? I am no more than just one example, or case study, here.

So, what do you want your local trust to offer you to better access your health care? I'll take all your ideas forward with me to that meeting.

Parents Reply
  • Indeed. Also, I have real trouble asking for things or i only say if asked directly. I didn't know you could ask for time off work, I thought it was up to the doctor's discretion. I was completely empty and at the end of coping/not coping,, walking out of the GP's door before I thought "I wonder if I should mention it".

    I completely understand what you mean! I sometimes don’t provide what is apparently relevant information at various appointments because I have not been asked explicitly!

    If only non autistic people could communicate clearly and say what they mean.

Children
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