Rule 13: the last nail in NAS's coffin?

Today completes an important step for the National Autistic Society. Today with Rule 13 they complete the abdication of responsibility for supporting autistic adults reaching out for help.

You may remember in 2021 that the National Autistic Society closed its general helpline. There was a thread about it on this forum. As was pointed out at the time from that point onwards this forum became the only port of call at the National Autistic Society for help for people who did not qualify for one of the remaining helplines.

And the remaining helplines pertain to children in school, children leaving school and parents of autistic children. The National Autistic Society has become a defacto children’s charity leaving autistic adults out in the cold.

Now not content with refusing to help autistic adults they now seek to reduce autistic adults ability to help each other. I fully admit that a bunch of amateurs on an autistic support forum is a poor substitute for professional help. However the vast majority of those seeking such help now have nowhere to go professional or otherwise.

Some of you know that I also brought a lawsuit against an organisation for discrimination. I reached out to the citizens advice bureau and got no useful help. I reached out to the EASS and they said that they couldn’t help me because the other party would not engage with them. I wrote to established academics with a background in discrimination law and autism and they said they couldn’t help me.

Yes I rang that autism helpline back when it existed, back when I tried to get some justice and they said we can’t help you. But at least I spoke to someone who admitted that he was supposed to be able to help me. That helping me was what he was there for.

With regard to the law when you bring a case for discrimination most of the time legal aid is not available. This is in part because the majority of discrimination cases go through the small claims track which is intended to operate without lawyers.

Something similar applies to the health service. It’s very easy for autistic people to get sidelined in the health service particularly if they are bad at articulating their needs and concerns. Again I know this from personal experience.

At this point if autistic adults come to this forum or the loved ones of autistic adults come to this forum and say they are having difficulty with the law or discrimination or a medical issue rule 13 interpreted strictly means that we can provide no helpful advice other than pointing to sources of help that in fact do not exist.

For quite some time now I have run a website dedicated to helping autistic people defend their rights and oppose discrimination. I chose not to include a forum on that website because I was aware that policing it could involve a substantial amount of work. However this development has persuaded me to change my mind. So I’m announcing that areyoualien.uk now has a forum for autistic people. The focus of this forum like the website is advocating for autistic rights in government policy and the law and opposing discrimination. You are all very much welcome there.

Parents
  • The fact that no one from the NAS seems to have replied to this post in the last 7 days to clarify this rule speaks volumes. 

    Autistic people need clarifcation, we hate vagueness.

    It seems like even our own society doesn't understand us 

  • To be honest I don't envy the mods. I feel like they are probably stuck between higher ups who would rather NAS be about autistic kids and view this forum as being for parents. The kind of people who won't be thrilled about people like me pointing out that NAS isn't doing much for autistic adults on NASs own forum. And on the other hand they mods have to deal with us, a lot of unruly, mostly high functioning, autistic people who blame them for the edicts NAS hands down.

    Their position is a little bit like black adder trying to convince the generals that walking slowly towards the machine guns is not a good idea. https://youtu.be/y9o_nu6WWEg?t=89

    In short I think NAS top brass would be quite happy if autistic adults just stoped posting here.

  • Hi Peter. Years ago, a small group of people tested a forum with me that was inspired by Alex Wrong Planet (2004 USA). In 2011 I saw it born. Now it is the shadow of what it was then. § I would say that it was probably the best forum for Aspergers at the time.Better than the original forum.§Perhaps we Europeans are less inclined to define things as simple, but we always delve into them a lot.§Although you and we have been collaborating very well with the USA for many decades .§What happened after 2011?They made everyone's attendance expand.This distorted our specificity as autistic adults.§They also allowed parents of children not even really with defined autisms to enter.Because at a very early age, the diagnoses were then still very approximate in the world. Now you can no longer do much. § What we don't do in Italy too is follow autistic adults. § So you're not the only ones lacking in this. But sex happens here too, and between the other we pay for a public health service, to then also pay for some services that should be covered by taxes. § Last time my psychiatrist told me that according to him autism "is a" "disease"" of children ! § Now, in addition to totally disagreeing with a serious statement like this: from the APA 1994 and the various DSM5 and ICD up to the last, things are very clear in this regard. § I asked him ... but according to you, doctor, after that an autistic person becomes an adult then what does his disease transform into" in your opinion? He was not able to answer me. § Because the answer to a question like this cannot exist. § In my region, children and adolescents up to 18 years of age are followed perfectly (Now) Then, after the age of 18, absolute emptiness. § I have previous diagnoses, and diagnoses from scientific research, otherwise I wouldn't even have accepted things, for me both the tests, the diagnostic procedures, and the visits are worth a lot. the timing of the diagnosis, the doctors with hundreds of published researches at the basis. §IN any case, at least for me it was so stressful that I stopped in the request for rights sanctioned by law of the Italian State. §After diagnostic months, other diagnostic visits and procedures really long and married for years. I thought the diagnosis would lead to a change in psychological therapies adapted to the autism spectrum. they criticized! § In fact, he doesn't follow anyone. And I'm not responsive to anything. Neither drugs, nor psychological therapies, subjects that I loved very much. § I don't know Peter. I've only been here for a while. As you said, some rules and directionality taken on by the Community would need to be reviewed (they are also in my opinion)§For having interacted with it with moderation since I wanted to cancel myself completely, I found people who did everything to prevent me from doing it.§So I don't know if it's the true reality that we disturb as autistic adults.§In a post it was written that we are many estrnei.Yes, but we are until we trust each other.§I trust you.§I think that some rules can be calmly even magazines.Maybe now they read to understand how harmful these stringent rules are.Because, if you give an autistic person a clear and free path, he or she (I note the almost total absence of girls in the answers I would like us to write all instead)They will use it with the utmost diligence.If, on the other hand, they feel forced to follow rules that hide expressive difficulties, then they will write less and less.§One does a harakiri instead of being of help.There are so few of us here, that if if we went in the majority, the form would die. § This has already happened with us, the forum is a non-profit organization. But it hides too many managerial errors. I am referring to ours. § People are informed... Which ones? I was wondering what was the use of calling Anthony Attwood to make him talk to people already involved in autism. The communication should be aimed at people not yet involved in understanding. §I think we understand each other very well. But if we have to explain to others the things is a communicative disaster. § I often say that it's not the answers that are wrong, but that sometimes it's the questions that are wrong (posed badly and to unhelpful people § I think that we autistic HFAs have a responsibility towards our younger brothers who struggle because they have less voice than us.Certainly not less talents.Some with really low IQs are extraordinary individuals in some particularities, others just have deficits.Just like we have them.Every day I learn at least one interactional aspect for me new.§Then I improve.I don't improve in other things like NT communication.§If you know the aspie quiz , the diagram is almost entirely addressed to the ND sector and that's it.Not good.Sometimes I get 10 out of 10 .average is 8 out of 10 in the graph.§I thought it would change after the diagnosis

Reply
  • Hi Peter. Years ago, a small group of people tested a forum with me that was inspired by Alex Wrong Planet (2004 USA). In 2011 I saw it born. Now it is the shadow of what it was then. § I would say that it was probably the best forum for Aspergers at the time.Better than the original forum.§Perhaps we Europeans are less inclined to define things as simple, but we always delve into them a lot.§Although you and we have been collaborating very well with the USA for many decades .§What happened after 2011?They made everyone's attendance expand.This distorted our specificity as autistic adults.§They also allowed parents of children not even really with defined autisms to enter.Because at a very early age, the diagnoses were then still very approximate in the world. Now you can no longer do much. § What we don't do in Italy too is follow autistic adults. § So you're not the only ones lacking in this. But sex happens here too, and between the other we pay for a public health service, to then also pay for some services that should be covered by taxes. § Last time my psychiatrist told me that according to him autism "is a" "disease"" of children ! § Now, in addition to totally disagreeing with a serious statement like this: from the APA 1994 and the various DSM5 and ICD up to the last, things are very clear in this regard. § I asked him ... but according to you, doctor, after that an autistic person becomes an adult then what does his disease transform into" in your opinion? He was not able to answer me. § Because the answer to a question like this cannot exist. § In my region, children and adolescents up to 18 years of age are followed perfectly (Now) Then, after the age of 18, absolute emptiness. § I have previous diagnoses, and diagnoses from scientific research, otherwise I wouldn't even have accepted things, for me both the tests, the diagnostic procedures, and the visits are worth a lot. the timing of the diagnosis, the doctors with hundreds of published researches at the basis. §IN any case, at least for me it was so stressful that I stopped in the request for rights sanctioned by law of the Italian State. §After diagnostic months, other diagnostic visits and procedures really long and married for years. I thought the diagnosis would lead to a change in psychological therapies adapted to the autism spectrum. they criticized! § In fact, he doesn't follow anyone. And I'm not responsive to anything. Neither drugs, nor psychological therapies, subjects that I loved very much. § I don't know Peter. I've only been here for a while. As you said, some rules and directionality taken on by the Community would need to be reviewed (they are also in my opinion)§For having interacted with it with moderation since I wanted to cancel myself completely, I found people who did everything to prevent me from doing it.§So I don't know if it's the true reality that we disturb as autistic adults.§In a post it was written that we are many estrnei.Yes, but we are until we trust each other.§I trust you.§I think that some rules can be calmly even magazines.Maybe now they read to understand how harmful these stringent rules are.Because, if you give an autistic person a clear and free path, he or she (I note the almost total absence of girls in the answers I would like us to write all instead)They will use it with the utmost diligence.If, on the other hand, they feel forced to follow rules that hide expressive difficulties, then they will write less and less.§One does a harakiri instead of being of help.There are so few of us here, that if if we went in the majority, the form would die. § This has already happened with us, the forum is a non-profit organization. But it hides too many managerial errors. I am referring to ours. § People are informed... Which ones? I was wondering what was the use of calling Anthony Attwood to make him talk to people already involved in autism. The communication should be aimed at people not yet involved in understanding. §I think we understand each other very well. But if we have to explain to others the things is a communicative disaster. § I often say that it's not the answers that are wrong, but that sometimes it's the questions that are wrong (posed badly and to unhelpful people § I think that we autistic HFAs have a responsibility towards our younger brothers who struggle because they have less voice than us.Certainly not less talents.Some with really low IQs are extraordinary individuals in some particularities, others just have deficits.Just like we have them.Every day I learn at least one interactional aspect for me new.§Then I improve.I don't improve in other things like NT communication.§If you know the aspie quiz , the diagram is almost entirely addressed to the ND sector and that's it.Not good.Sometimes I get 10 out of 10 .average is 8 out of 10 in the graph.§I thought it would change after the diagnosis

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