Rule 13: the last nail in NAS's coffin?

Today completes an important step for the National Autistic Society. Today with Rule 13 they complete the abdication of responsibility for supporting autistic adults reaching out for help.

You may remember in 2021 that the National Autistic Society closed its general helpline. There was a thread about it on this forum. As was pointed out at the time from that point onwards this forum became the only port of call at the National Autistic Society for help for people who did not qualify for one of the remaining helplines.

And the remaining helplines pertain to children in school, children leaving school and parents of autistic children. The National Autistic Society has become a defacto children’s charity leaving autistic adults out in the cold.

Now not content with refusing to help autistic adults they now seek to reduce autistic adults ability to help each other. I fully admit that a bunch of amateurs on an autistic support forum is a poor substitute for professional help. However the vast majority of those seeking such help now have nowhere to go professional or otherwise.

Some of you know that I also brought a lawsuit against an organisation for discrimination. I reached out to the citizens advice bureau and got no useful help. I reached out to the EASS and they said that they couldn’t help me because the other party would not engage with them. I wrote to established academics with a background in discrimination law and autism and they said they couldn’t help me.

Yes I rang that autism helpline back when it existed, back when I tried to get some justice and they said we can’t help you. But at least I spoke to someone who admitted that he was supposed to be able to help me. That helping me was what he was there for.

With regard to the law when you bring a case for discrimination most of the time legal aid is not available. This is in part because the majority of discrimination cases go through the small claims track which is intended to operate without lawyers.

Something similar applies to the health service. It’s very easy for autistic people to get sidelined in the health service particularly if they are bad at articulating their needs and concerns. Again I know this from personal experience.

At this point if autistic adults come to this forum or the loved ones of autistic adults come to this forum and say they are having difficulty with the law or discrimination or a medical issue rule 13 interpreted strictly means that we can provide no helpful advice other than pointing to sources of help that in fact do not exist.

For quite some time now I have run a website dedicated to helping autistic people defend their rights and oppose discrimination. I chose not to include a forum on that website because I was aware that policing it could involve a substantial amount of work. However this development has persuaded me to change my mind. So I’m announcing that areyoualien.uk now has a forum for autistic people. The focus of this forum like the website is advocating for autistic rights in government policy and the law and opposing discrimination. You are all very much welcome there.

Parents
  • Hi online community users,

    Thankyou for your post and comments on this thread. 

    Peer support is encouraged on this platform but as the rule states, users should not provide legal or medical advice. If you are unsure whether your  advice is legal or medical, please do get in touch with our moderation team by emailing communitymanager@nas.org.uk .

    Moderators may remove posts that break any of the community rules (https://community.autism.org.uk/p/rules), without prior warning. However, often the approach is to post a rules reminder in the thread and contact the user directly. Banning members is something we try to avoid where possible although sometimes users will be placed into moderation for a set period of time.

    We hope this provides some reassurance, please do get in touch at the email address mentioned if you have further questions.

    Kind regards,

    Clare Mod

  • Respectfully that's as clear as mud. Define the difference between peer support and advice please.

    And the suggestion that people concerned should contact a mod is totally unrealistic given the average turn around time on that is about 24 hours sometimes more.

  • I think maybe together we can find a useful way to stick to the rules and write with prudence on some topics.
    
    You have the decidedly greater experience of seniority compared to me who have been here for a very short time.
    
    It's not okay to ask to delay a post by 24 hours, ok.
    
    But a useful way to write better being in the forum is can propose.
    
    Maybe by opening a special thread only on suggestions on what seems wrong or not very functional to you.
    
    
    My feeling is that by copying some regulations of important Italian forums, additional rules can be avoided.
    
    I write to copy some rules to avoid having to rewrite regulations from scratch or change them into additional rules.
    §
    
    I think we can vote for the best ones if we want to make a new regulation that appeals to the majority of us.
    
    Maybe one thing can give a sense of annoyance: these are the impositions.
    
    
    But what if we shared a guideline on how to orient ourselves to write freely while maintaining impeccable ethics?
    
    I find myself writing about topics that we would not be discussing.
    
    As you would immediately receive a recall.
    Or a ban .
    
    What I may have understood from my poor English is that we should be careful not to infer specific medical and legal spheres.
    
    I am also displaced because here it has not been discussed as an argument.
    
    One tends to write in a very aseptic way.
    
    Here in a way that I find more empathetic than us.
    
    By signing up here I noticed that you are much more empathetic and emotional than us.
    
    I find it important.
    
    In general, I read you and perceive that you direct a lot of heart and feelings with respect to us.
    
    Our forums are colder, I don't know how to explain it.
  • I would say you only really need to exclude trolls or indeed closing entire form to deal with trolls when there’s a lot of them and they’re all working together. My point is that’s not the situation here. It’s not the situation in the other forum I’ve set up either.

    however if a habbo hotel situation occurred that made self policing unrealistic the mods here would be as powerless as I would be on my forum. That was my point.

Reply
  • I would say you only really need to exclude trolls or indeed closing entire form to deal with trolls when there’s a lot of them and they’re all working together. My point is that’s not the situation here. It’s not the situation in the other forum I’ve set up either.

    however if a habbo hotel situation occurred that made self policing unrealistic the mods here would be as powerless as I would be on my forum. That was my point.

Children
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