Rule 13: the last nail in NAS's coffin?

As a newcomer to the site I have learned so much that has helped me to rationalise my 'condition', if I can call it that, through what I've always assumed to be perfectly acceptable open discussion. I have also had certain literature recommended to me, which has also been a great help. Does this constitute medical advice? You could argue it either way.

Thank you to everyone who has given advice freely thus far...just in case that river gets dammed sometime soon. As several people have already said, this is almost certainly driven by fear of litigation, and therefore somewhat understandable if regrettable.

Pleasure. I'm also a newcomer to the site. § It's called an autistic condition, at least this term is used by us. Then I wouldn't be able to write to you from here. § I'll tell you no! I'll explain. medical advice .And not even in a nihilistic advice, if for example a literature devoid of ethics were recommended (example: how to die, none of us would do it I set an impossible extreme example, given that we are good and correct people). §Let's put ourselves in the perspective of a forum. Which accepts us with a diagnosis of autism, but also with other types of problems (a very long speech that I don't do) and with questions aimed at understanding oneself. § A medical advice is when a user writes not Ethically to use a drug, make a diagnosis without the title of a specific degree, when you try to interrupt a therapy, when you use, for your personal reasons or malice, interactional methods of doing nothing prescribed by a doctor or do not write a very simple sentence of the according to my opinion and of the own experiences. That it is not helpful without overstepping unstable boundaries in very fragile people. You praise therapies not shared by the scientific world. it was published in SCIENCE for example. There is a not fine line between informing and medically advising. § I write that here in Italy it is perfectly normal and right (sorry if I have already written it); call peremptorily and if repeated the call this leads immediately to the Ban (exclusion forever from the forum)§ To say that NAS, perhaps with a rule number 13 protects itself from legal actions not wanted by NAS, is the least I can do.§ Question ... but have you ever wondered why NAS Forum in this case should immediately regulate something with a rule 13? I studied 5 years of logic at school. I could describe hundreds of pages of this subject to you, I won't I will use only one answer: it is not that if they did it it means that they were not protected? In perfect good faith they accepted the comments of users who in the best case could also be wrong. I also wrote that I could have unintentionally made a mistake in answering here in the thread. §This is possible! §I'll give you an example, in one of our regions we have a Governor called Luca Zaia. He is super good. He does a hundred things for example, but he can also make some mistakes. He is well liked by people because he admits he is wrong when he is wrong. He is rarely wrong too. Isn't it normal to have a regulation? Why is it so annoying to have a regulation that fills a potential lack in the regulation itself? Isn't it good? Let us ask ourselves really why there are all these hesitations to a rule if anything. § A rule provides for impositions. But impositions allow the site to exist. If they are violated? The site that suffers? I am writing to you myself that maybe in six days I'll be here longer because I unintentionally wrote something wrong here in the thread. I'm not sure I'm biased. If you don't see me it will be because of this thing. If it happens it will only be my fault, not the site and whoever manages it, but only mine. I accept this. And I wish you all the best for a good continuation. I will never write that the site was wrong. If anything, I hope that the site will remain without me. I am here now, I may not be there soon. My intention is to write it in a super serene way. Don't complain. In my opinion, anyone who complains about these things is doing it wrong.

I will have for this another flag (?)

Which I won't oppose because it becomes stressful for me to find excuses and it always repeats itself.

My apologies to everyone if I have offended your sensibilities, it is not my intent, I am very sensitive too, and I would greatly appreciate it if that were the case.

Thank you

Pleasure. I'm also a newcomer to the site. § It's called an autistic condition, at least this term is used by us. Then I wouldn't be able to write to you from here. § I'll tell you no! I'll explain. medical advice .And not even in a nihilistic advice, if for example a literature devoid of ethics were recommended (example: how to die, none of us would do it I set an impossible extreme example, given that we are good and correct people). §Let's put ourselves in the perspective of a forum. Which accepts us with a diagnosis of autism, but also with other types of problems (a very long speech that I don't do) and with questions aimed at understanding oneself. § A medical advice is when a user writes not Ethically to use a drug, make a diagnosis without the title of a specific degree, when you try to interrupt a therapy, when you use, for your personal reasons or malice, interactional methods of doing nothing prescribed by a doctor or do not write a very simple sentence of the according to my opinion and of the own experiences. That it is not helpful without overstepping unstable boundaries in very fragile people. You praise therapies not shared by the scientific world. it was published in SCIENCE for example. There is a not fine line between informing and medically advising. § I write that here in Italy it is perfectly normal and right (sorry if I have already written it); call peremptorily and if repeated the call this leads immediately to the Ban (exclusion forever from the forum)§ To say that NAS, perhaps with a rule number 13 protects itself from legal actions not wanted by NAS, is the least I can do.§ Question ... but have you ever wondered why NAS Forum in this case should immediately regulate something with a rule 13? I studied 5 years of logic at school. I could describe hundreds of pages of this subject to you, I won't I will use only one answer: it is not that if they did it it means that they were not protected? In perfect good faith they accepted the comments of users who in the best case could also be wrong. I also wrote that I could have unintentionally made a mistake in answering here in the thread. §This is possible! §I'll give you an example, in one of our regions we have a Governor called Luca Zaia. He is super good. He does a hundred things for example, but he can also make some mistakes. He is well liked by people because he admits he is wrong when he is wrong. He is rarely wrong too. Isn't it normal to have a regulation? Why is it so annoying to have a regulation that fills a potential lack in the regulation itself? Isn't it good? Let us ask ourselves really why there are all these hesitations to a rule if anything. § A rule provides for impositions. But impositions allow the site to exist. If they are violated? The site that suffers? I am writing to you myself that maybe in six days I'll be here longer because I unintentionally wrote something wrong here in the thread. I'm not sure I'm biased. If you don't see me it will be because of this thing. If it happens it will only be my fault, not the site and whoever manages it, but only mine. I accept this. And I wish you all the best for a good continuation. I will never write that the site was wrong. If anything, I hope that the site will remain without me. I am here now, I may not be there soon. My intention is to write it in a super serene way. Don't complain. In my opinion, anyone who complains about these things is doing it wrong.

I will have for this another flag (?)

Which I won't oppose because it becomes stressful for me to find excuses and it always repeats itself.

My apologies to everyone if I have offended your sensibilities, it is not my intent, I am very sensitive too, and I would greatly appreciate it if that were the case.

Thank you

you know, in my life I have had many passions, for different subjects, some I have studied for many years, others less. I've always read up on so many things. I know several languages ​​and dialects, I don' t count them but there are so many, not so much English as you will notice :) I understood that in me something was different than in others, but not what!

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I have memories of when I was very young, some very early.

At the age of 4, something changed in me.

I began to understand that I have deficits, but not why.

So I started to change those deficits wherever I could and I partially succeeded.
I have a lot of defects including ADHD , alexithymia and others and still others including dysgraphia.

I arrive in 2001 to listen to Giorgio Nardone and the genius Paul Watzlawick.

I think I have social phobia.
But specialists don't find I have it.
I hypothesize an avoidant personality disorder, in psychology you change your cluster and it's not easy to treat.
But I don't have it.

Basically, despite having an IQ beyond the GIfetd level, I can't do normal things.

My father asks me what I have.
I tell him that I haven't figured it out yet.

I spend years studying about myself what my deficits consist of.

Just by chance in a forum I am compared to an Asperger who writes like me and thinks similar to me.

He writes to me in public that according to him I have something else.

I reply that I have no medical findings.

So you can't claim to be like him.

It was now 2010.
In 2012 a psychiatry specialist (which was one of my favorite subjects) relates to me: Asperger from DSM 4th.

I continue for years to help others with my condition, assuming I have no diagnoses from people truly qualified in autism.

But in the forums I receive thousands of attestations of similarity to their diagnosis.

Still another 9 years pass during which I become part of scientific research by experts with thousands of validated publications.

I have a diagnosis after 9 months time.
I take the diagnosis to the general practitioner who at first does not seem to understand me but issues a certification for me to be evaluated by other different medical commissions.

I have after another 2 years the call for the first visit, then the other one.

I'm at the end of my strength and I go to my general practitioner to ask to stop things there.

I ask to be excluded from the assessments (We give a percentage of disability and therefore money based on the severity)
In doing so I basically give up the money, the recognized diagnosis and future visits.

The doctor then calls the director of the evaluation commissions.

Feeling that I refused an evaluation that also involved money for adaptive therapies, he praised me.

And he urges me to go to them.

He is amazed by my frankness and fairness.

With immense effort I await views 1 and then the second where he asks me what he has.

I ask to read the doctors' reports and I explain very quickly what it consists of.

In summary I get a percentage of 75% (The average is 42%).

My doctor is not smiling for the first time and I see him getting angry.

They gave you the minimum possible, you were 100% entitled.

Having studied law , I know my rights , but I will not sue for the next 6 months .

Because I'm exhausted and I don't feel like doing any more visits, and the years have been too many.

They give me a minimum check and I write in the request to make use of the right of law 68 which gives job opportunities.

Now in three years they have not assisted me at all, and I have no cure for my major depression, and to improve my social skills.
I have nothing, just a check for over 300 euros.

I asked to give up the money to have a job at my level.

They do nothing.

The difficulties for us autistics, if they are not comorbid with anything else, are purely of communication.

I find support from my general practitioner because in the meantime he was informed about what it consisted of. I find support from three specialized psychiatrists.

Which tell me not to take any medication in my case.

Now and in fact I'm without any real support.

What do I do?

I wanted to ask it here.

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Here I have noticed that people are of a high quality profile, they are over average in their IQ.

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I often read wonderful posts.

They are written by very smart people.

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I understand what you wrote and I sympathize with you.

As an alexithmic, I can still understand some things and what you write is not at all far from the factual truth of the situations of autistic over 18s.
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As for writing, I understand that too. §§ And I understand that in an autistic forum, being careful about how to formalize a post is a real problem.

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This aspect should be evaluated
§I understand that NAS has objective reasons to protect itself.

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We must try to understand together with the moderators how to overcome this obstacle.

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But I advise you not to start thinking negatively.
§On the rest I'm used to it because you can't recommend almost anything with us.

You're out of the forum right away if you do.

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I know: Italy is thought of as if it were the place where the rules are lacking or not respected.

In some places they are peremptory.

It is not allowed to transgress them at all

not even people are listened to in the forums because even in mine, which I started years ago, there are clear ways of not listening.


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On the rule of writing medical advice, perhaps what and how to do for us should be clarified, because otherwise, and with all the goodwill of the way, we would be wrong.
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In the Italian forums I posted the sentences written in one of my national languages ​​(there is one official one but for example there are several others, as well as 17 dialects.

My parents spoke both French and German as a second language!


In addition to other languages ​​and dialects.

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I wrote technically perfect posts in an aseptic way and asked questions instead of defining a sensation, I put question marks at the end of each sentence.

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IN 5 years they have banned many of my virtual friends.

While I have never received the ban, I am still an active user.

But I haven't written to him for years.

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Label ... for a diagnosis from us they write but what are you doing now with a label?

I once replied...

I wrote that even on delicate garments, the label to wash it appears unless you want to ruin it.

If you don't understand fundamental things, you won't be able to help anyone.

A label can help.

Of course: we are not the label!

But it is essential for us to make progress if used well.

And attention: To progress as autistic by not aping neurotypical people, because we are autistic, and we don't have autism as they write.

It would be like writing we are (verb to be) and we don't have (verb to have).

It really makes a difference.

Because we are not wrong, we are neurologically different.

This message never gets across the media.

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As for spam or flags, in my case I may have made a mistake in communicating... I apologize for that.

For the rest I don't know what will happen: I only know that waiting is stressful.

Waiting for a decision, on posts that I no longer see.

I would pay attention to the spam and flag reporting system, it should be re-evaluated by the site.

However, I will never contest a decision, but I will take note of it, at most you won't see me here.

After removing the ifs and buts, I thank you for being able to interact or read with you.

Such an interesting point you make there, when you consider that the cure is worse than the disease, when one has to mask in order to have a genuine-interaction..

Personally I'm not easily offended, unless it's something profoundly negative and/or aggressive . I was recommended by my GP to visit this site, and for that I thank him too. I understand from previous threads that a GP can't make a formal diagnosis but the one I spoke to seemed very understanding and knowledgeable about the subject, at least from my 'novice' point of view. The openness of everyone on here is what makes it so helpful and I'd hate for any kind of 'censorship' to deny people that opportunity to share freely. When we have to walk on eggshells it almost becomes a form of masking in itself. Hopefully common sense prevails. There is an obvious level of intelligence amongst those posting here regularly that tells me nobody would get away with bad advice or disrespectful comments for very long before being held to account anyway. As I've discovered, often to my detriment, the very nature of autism can mean a lack of verbal filtering, but if I'd known before what I know now then I'd probably still be in a relationship instead of finding myself alone again at 58 years old. As I've said before, putting a label on it doesn't change the fact that I have a disorder but it does mean that I can now ask the right question to the right people and get honest answers from those that can relate to what I'm experiencing. To lose that now would be a real wrench.