Rule 13: the last nail in NAS's coffin?

Today completes an important step for the National Autistic Society. Today with Rule 13 they complete the abdication of responsibility for supporting autistic adults reaching out for help.

You may remember in 2021 that the National Autistic Society closed its general helpline. There was a thread about it on this forum. As was pointed out at the time from that point onwards this forum became the only port of call at the National Autistic Society for help for people who did not qualify for one of the remaining helplines.

And the remaining helplines pertain to children in school, children leaving school and parents of autistic children. The National Autistic Society has become a defacto children’s charity leaving autistic adults out in the cold.

Now not content with refusing to help autistic adults they now seek to reduce autistic adults ability to help each other. I fully admit that a bunch of amateurs on an autistic support forum is a poor substitute for professional help. However the vast majority of those seeking such help now have nowhere to go professional or otherwise.

Some of you know that I also brought a lawsuit against an organisation for discrimination. I reached out to the citizens advice bureau and got no useful help. I reached out to the EASS and they said that they couldn’t help me because the other party would not engage with them. I wrote to established academics with a background in discrimination law and autism and they said they couldn’t help me.

Yes I rang that autism helpline back when it existed, back when I tried to get some justice and they said we can’t help you. But at least I spoke to someone who admitted that he was supposed to be able to help me. That helping me was what he was there for.

With regard to the law when you bring a case for discrimination most of the time legal aid is not available. This is in part because the majority of discrimination cases go through the small claims track which is intended to operate without lawyers.

Something similar applies to the health service. It’s very easy for autistic people to get sidelined in the health service particularly if they are bad at articulating their needs and concerns. Again I know this from personal experience.

At this point if autistic adults come to this forum or the loved ones of autistic adults come to this forum and say they are having difficulty with the law or discrimination or a medical issue rule 13 interpreted strictly means that we can provide no helpful advice other than pointing to sources of help that in fact do not exist.

For quite some time now I have run a website dedicated to helping autistic people defend their rights and oppose discrimination. I chose not to include a forum on that website because I was aware that policing it could involve a substantial amount of work. However this development has persuaded me to change my mind. So I’m announcing that areyoualien.uk now has a forum for autistic people. The focus of this forum like the website is advocating for autistic rights in government policy and the law and opposing discrimination. You are all very much welcome there.

Parents
  • I hate rules that shut down discussion of anything medical related with "see a professional." It's a minimum six-week wait to see my GP. It's often helpful to get an idea of what to do in the meantime from other people who have had the same experience.

  • Unfortunately in many places, GPs are no longer a viable service. Even if the government funds the NHS adequately it will take six or seven years to train and recruit more GPs. A&E is not much better unless you are a "blue light" critical care case. NHS 111 can offer advice, and I have known them to arrange a next-day GP appointment. Our local hospital has a GP-led clinic that deals with primary care patients who turn up at casualty, either because they are not registered with a GP or can't get an appointment.

    GPs always have been private businesses. Maybe what we need, certainly in major towns and cities, is a proper primary care facility, with salaried GPs, diagnostic facilities, and other health care professionals. It is ridiculous to visit your GP, and then be sent to the hospital pathology department for a blood test, for example. Some GP practices have counsellors,physiotherapists, and other services on-site. Others are one-man bands like something out of Dr Finlay's casebook.

  • Could we have a share this discussion and explain the rationale behind these rules and how they are implemented, please?

Reply Children