Published on 12, July, 2020
So I go to a local group that runs events for people with learning disabilities / ASD. I made a point of asking before I joined is this appropriate for high functioning people and was assured yes it was.
they are completely useless. 90% of the events they run are 9-5 Mondays to Friday. Not suitable for people with jobs. Mostly unexciting stuff like ‘trip to the shops / cafe.’ The one function they were started to facilitate, ‘dating’ they no longer do. But today takes the biscuit.
Having organised a weekend treasure hunt around the city centre, no one including the organiser turned up. No notice of cancellation or rearranging the time. Just radio silence. Emailed them, rang the office, nothing.
it wasn’t their fault I struggled to make connection with the mostly low functioning members. I understand the rationale around the event choices and times given their members intrests and availability. But this is just rank unprofessionalism.
That is sad... I also haven't received any support post-diagnosis so far, which is disappointing. And whenever I mention being autistic in light of my mental health and eating issues when talking to the GP, I just get no response and I feel like they think it is not relevant...
In terms of groups, there is a group run by the NAS that meets every 2 weeks on a Sunday evening but I've not attended so far...
The best place to connect to people and support each other has been this community.