Support Groups for High Functioning Autism/Asperger Adults who are

Hi, Everyone,

I've recently been diagnosed with High Functioning Autism/Aspergers in my 40's and I'm wondering if there are support services or groups for people like me who are just about coping with life but could do with a little extra support?  From what I can see online so far, the majority of the support is aimed toward children and parents and those with more severe learning or behavioural difficulties.  I understand that these groups have the most acute challenges, but I'm wondering if there is anything in the community for those, like me, that are just about muddling along.  Any help in finding any groups or support would be gratefully received.  Thanks for reading.

Chris 

Parents
  • I would be interested in this too - I'm in my mid 30's in the North West. I am "muddling through" life. It's peer support I'd like more than anything. Just to be able to talk with people who are in the same boat. Maybe we should set up our own peer support group.

  • I totally agree. To be honest we are barely ‘muddling through’ at the moment. It’s been really helpful for me to come on here - and it’s made me realise that the people who I can really relate to and talk to are other autistic people. I know it sounds stupid but I hadn’t really grasped this before - I thought I was just rubbish at making friends and I found socialising so stressful that I just withdrew from it. My youngest son got an autism diagnosis about 10 years ago when he was at secondary school - and that’s when I realised that I was autistic too - and things started to make sense.  My husband has lots of autistic traits, and my eldest son is autistic (although he managed to do brilliantly academically so is currently doing quite well in the conventional sense - despite having lots of challenges due to his autism). 
    Our situation at the moment is that we have had a very difficult year and both my youngest son and I are just about managing to get through each day - but struggling so much. We are totally burnt out. There is so little help for us. My son gets an hour of CBT on the phone a week - that’s it. I’m on a ridiculously long waiting list for therapy for PTSD. None of this is helping. The best help I’ve had is from coming on here and talking to people who understand what it’s like. It’s been such a relief to realise that we’re not alone in that respect. 

  • Yes I think MH services are very stretched at the moment - that is my experience. Althought I think they always have been stretched it's just the pandemic has exacerbated this. Have you had a look at non-autistic support groups in your area? Can your MH team direct you to some? (Mine recommended lots of community groups etc that I could have a go at accessing). I did a mindfulness course last year with my local adult education centre - it was free for people with mental health needs (basically anyone then). In my area things are not well publicised so until you go asking you don't know what's on offer.

  • My son doesn’t open up to me about what his ocd thoughts are as he finds them very distressing to talk about - so I don’t know. I don’t even know the subject area of them. I can see what your getting at though - but without knowing I can’t apply what you’re saying to his situation. I can see the distinction you’re making and it’s an interesting perspective. 
    The CBT he is having for is OCD hasn’t helped at all - so far he’s had 7 sessions. 

  • Just out of curiosity - what are his thoughts about. They can give a clue into what he could potentially excel at. I personally feel OCD is a mis-diagnostic of a hyper-active brain (OR maybe this is normal and NT brains are under-active, or maybe it's neither and it's JUST the analytical reasoning desperate to be put to proper use).

    It's important to separate issues of Health & Wellbeing / Safety (every time I approach the stairs I think of falling down, thus a defensive being human technique of ensuring I focus on the task of going down them) from a - let's call it The Psychological Thriller in the mind - either induced from a thing one cannot unsee or from application of an analogy to alert matters of safety in Society (these nightmare items also being of Spiritual / Emotional consequence - matters of the 'Soul') from a potential to Specialise. 

    I had latched on to Melodies as a child and would have 3 unrelated songs or jingles playing in my head at once. I now work in sound and managed to eventually stream this into just One Song (it does change up) at a time in my head, but the music Never Ceases. Is that OCD? No. It's a brain wired for Melodies and Rhythms and I can put it to use. 

    OCD from a medical standpoint is about control. The basis of OCD is about things we cannot control which we want to dominate. It is related to NeuroTypcial competition wired into the social codes. 

  • Yes - I offered to go and volunteer there  too - if it would help (I also offered NOT to go too - if that would help!). 
    He has a thing about associating ‘good’ things with ‘bad’ things - so he’s worried about trying something that he might not like with our local country parks that he enjoys walking in. It’s so complicated for him. He has OCD and problems with trying to control his thoughts and compartmentalise things in his mind. It breaks my heart that his life is so hard - he’s mentally tied up in knots with all his different worries. 
    Your online drawing class sounds great. I don’t seem to be able to find these sorts of things online - is there a central place for finding things like this?
    I take your point about me ‘taking a leap’ and that it might help my son to see me doing this. It’s a very good point - I’m sure you’re right. Thank you for making that point. I’m very afraid myself and I know it’s not helping my son. I carry a lot of guilt because of this. 
    Thank you for your suggestions - I hugely appreciate it Pray

Reply
  • Yes - I offered to go and volunteer there  too - if it would help (I also offered NOT to go too - if that would help!). 
    He has a thing about associating ‘good’ things with ‘bad’ things - so he’s worried about trying something that he might not like with our local country parks that he enjoys walking in. It’s so complicated for him. He has OCD and problems with trying to control his thoughts and compartmentalise things in his mind. It breaks my heart that his life is so hard - he’s mentally tied up in knots with all his different worries. 
    Your online drawing class sounds great. I don’t seem to be able to find these sorts of things online - is there a central place for finding things like this?
    I take your point about me ‘taking a leap’ and that it might help my son to see me doing this. It’s a very good point - I’m sure you’re right. Thank you for making that point. I’m very afraid myself and I know it’s not helping my son. I carry a lot of guilt because of this. 
    Thank you for your suggestions - I hugely appreciate it Pray

Children
  • My son doesn’t open up to me about what his ocd thoughts are as he finds them very distressing to talk about - so I don’t know. I don’t even know the subject area of them. I can see what your getting at though - but without knowing I can’t apply what you’re saying to his situation. I can see the distinction you’re making and it’s an interesting perspective. 
    The CBT he is having for is OCD hasn’t helped at all - so far he’s had 7 sessions. 

  • Just out of curiosity - what are his thoughts about. They can give a clue into what he could potentially excel at. I personally feel OCD is a mis-diagnostic of a hyper-active brain (OR maybe this is normal and NT brains are under-active, or maybe it's neither and it's JUST the analytical reasoning desperate to be put to proper use).

    It's important to separate issues of Health & Wellbeing / Safety (every time I approach the stairs I think of falling down, thus a defensive being human technique of ensuring I focus on the task of going down them) from a - let's call it The Psychological Thriller in the mind - either induced from a thing one cannot unsee or from application of an analogy to alert matters of safety in Society (these nightmare items also being of Spiritual / Emotional consequence - matters of the 'Soul') from a potential to Specialise. 

    I had latched on to Melodies as a child and would have 3 unrelated songs or jingles playing in my head at once. I now work in sound and managed to eventually stream this into just One Song (it does change up) at a time in my head, but the music Never Ceases. Is that OCD? No. It's a brain wired for Melodies and Rhythms and I can put it to use. 

    OCD from a medical standpoint is about control. The basis of OCD is about things we cannot control which we want to dominate. It is related to NeuroTypcial competition wired into the social codes.