Should I request an autism assessment?

Hi there,

I am looking for some honest advice from others who are going/have been through the process of autism diagnosis in adulthood. 

Some background: I am a female in my 30s. I have OCD (diagnosed in teens) and anxiety (recently diagnosed). I have always done well academically, gained 2 degrees and I work within the healthcare sector. However, throughout my life I have always felt ‘different’ to my peers - but put this down to my OCD. Over the years, several people have made flippant comments about me having ‘autistic traits’, which I never really paid attention to tbh  

Over the past 6 months or so, I’ve looked more in depth at my OCD (as I was going through counselling). However, another recent comment from a colleague had me looking into undiagnosed autism and I now can’t get the thought of it out of my head. I have done several of the autism screening tests, all of which have returned high scores:

AQ-10 - 8

AQ-50 - 34

RAADS-R - 126

I’ve begun noting down some characteristics as I notice them:

*I like routine, and struggle with change to routine/plans

*I like to be in control of situations, and like to carefully plan ahead

*I feel the need to complete tasks perfectly/completely right, and I really dislike not completing a task before moving on

*I see everything in black & white

*I struggle to build/maintain relationships, outwith family I have 1 friend (I have work colleagues, but don’t socialise outside of work as this is something I really struggle with)

*I find social interactions difficult - making/maintaining eye contact, often struggle to interpret peoples thoughts/feelings, I very often worry I’ve upset or angered people after I’ve finished a conversation even if there’s no indication of this.

*Social events make me very anxious - since my teens, I can count on one hand the number of social events I have attended without a close fanimus member or my husband with me

*I will often talk very fast when anxious/in a group of people or if discussing something which heavily interests me

*I will point out small mistakes (even in conversations, much to my husbands annoyance!)

*As a child I was a very fussy eater, much of it was down to food textures in my mouth - certain foods would literally make me gag. I am still like this with textures, although I am less fussy

There may be others I haven’t noticed/listed as of yet. 

I am apprehensive about following this up, as I am worried I’m overthinking/worrying and would be wasting peoples time.  There’s aspects of my life/characteristics that make me believe I am just worrying over nothing - for example, I am married with children, can deal well with loud noise (concerts/football crowds etc), I loved imaginative/role play as a child. I also worry that some of these could just be classic characteristics of OCD/GAD instead of autism traits  

I guess I am worried I am referred for assessment, have a long wait and then waste peoples time to be told I don’t have autism. Have others been through similar and could offer me advice? 

Parents
  • Thank you all for the responses. 

    I have been seeing a clinical psychologist, and brought up the topic with her. Sadly she can’t personally assess me through the role she is seeing me in, but has spoken to me in a bit of depth as to why I want to pursue it and is putting in a GP referral.

    I discussed a list of traits that I feel warrant a referral and diagnosis, on top of the above I included:

    *chewed my cot as an infant/toddler (so much so I wore down my front teeth. 

    *bed wetting until 5, had to be reminded to pee by parents when out of nappies as would often not realise I needed.

    *lining up toys as a child, setting barbies up in a perfect scene instead of playing with them traditionally.

    *excessive touching of objects (both as a child, to this present day) - have to touch objects evenly with full hand, has to ‘feel right’

    *obsessed with counting/numbers (again since childhood) - would (and still do) count steps when walking, count when chewing, would mentally count sky satellite dishes during any car journeys as a young child, obsessed with reading car registration plates, reading street signs and counting the number of letters.

    *organisation - items/objects have to be arranged in a particular order/way. For example - food items stored upright, labels facing precisely to the front, crockery & cutlery tidied away facing the correct way, bedding/towels folded in a specific way with labels folded at the bottom, money arranged heads up, notes ordered into denomination, then by serial code & date.

    *Trichotillomania during teen years (pulled hair our head), resulting in a bald patch on my head. 

    *often told I ‘overthink’ - however to me this is just normal thinking  I will consider all eventualities in almost all situations, especially before making decisions. Doing this allows me to be prepared for Al probably outcomes and plan accordingly, also reduces anxiety around situations.

    *difficulty in busy environments - too much background noise creates a table and makes it difficult to focus on a conversation. 

    *can often zone out of conversations if there are several background factors (e.g. noise, movement, light) - often unaware I’m doing this and will appear to still be focussing by nodding along, and will only realise when I zone back in and realise I’ve missed half a conversation. 

    This is not an extensive list - my current list is approximately 5 pages and I am adding more as I remember.

    The psychologist did say some of these traits could be anxiety/OCD, but was happy to refer me to the GP to pursue an autism assessment. I just feel so confused as to whether to pursue this - I am so anxious about doing so then being told I don’t have autism and I have wasted peoples valuable time. 

Reply
  • Thank you all for the responses. 

    I have been seeing a clinical psychologist, and brought up the topic with her. Sadly she can’t personally assess me through the role she is seeing me in, but has spoken to me in a bit of depth as to why I want to pursue it and is putting in a GP referral.

    I discussed a list of traits that I feel warrant a referral and diagnosis, on top of the above I included:

    *chewed my cot as an infant/toddler (so much so I wore down my front teeth. 

    *bed wetting until 5, had to be reminded to pee by parents when out of nappies as would often not realise I needed.

    *lining up toys as a child, setting barbies up in a perfect scene instead of playing with them traditionally.

    *excessive touching of objects (both as a child, to this present day) - have to touch objects evenly with full hand, has to ‘feel right’

    *obsessed with counting/numbers (again since childhood) - would (and still do) count steps when walking, count when chewing, would mentally count sky satellite dishes during any car journeys as a young child, obsessed with reading car registration plates, reading street signs and counting the number of letters.

    *organisation - items/objects have to be arranged in a particular order/way. For example - food items stored upright, labels facing precisely to the front, crockery & cutlery tidied away facing the correct way, bedding/towels folded in a specific way with labels folded at the bottom, money arranged heads up, notes ordered into denomination, then by serial code & date.

    *Trichotillomania during teen years (pulled hair our head), resulting in a bald patch on my head. 

    *often told I ‘overthink’ - however to me this is just normal thinking  I will consider all eventualities in almost all situations, especially before making decisions. Doing this allows me to be prepared for Al probably outcomes and plan accordingly, also reduces anxiety around situations.

    *difficulty in busy environments - too much background noise creates a table and makes it difficult to focus on a conversation. 

    *can often zone out of conversations if there are several background factors (e.g. noise, movement, light) - often unaware I’m doing this and will appear to still be focussing by nodding along, and will only realise when I zone back in and realise I’ve missed half a conversation. 

    This is not an extensive list - my current list is approximately 5 pages and I am adding more as I remember.

    The psychologist did say some of these traits could be anxiety/OCD, but was happy to refer me to the GP to pursue an autism assessment. I just feel so confused as to whether to pursue this - I am so anxious about doing so then being told I don’t have autism and I have wasted peoples valuable time. 

Children
No Data