Misdiagnosis I didn't even know about. Where do MH services stop traumatising people and start doing their job???

K. Tonight I am rocked to my very core. Still shaking.

I'll try and keep a very long story as short as I can. I need advice.

All MH services have ever done for me is traumatised and re-traimatise me. Now, they really have gone too far.

Some six years ago someone close to me was poorly. They handled it badly. Statutory guidelines were disregarded in terms of us as carers, Nice guidelines and sheer common sense were ignored. As a result as carers we were left to face genuinely life threatening situation after life threatening situation to the point my loved one almost died and we were at risk before they intervened. He is better now but tells me now "they were not nice to him". I, as his carer, had PTSD as a result. 

I went through the complaints procedure. Health watch wanted me to go to the ombudsman. It almost did. I ended up with a full written apology on all counts and an hour long call from their chief executive to apologise.

I have life long medical phobias. I needed medical treatment which sparked a chain if events landing me in the lap of MH services myself. They failed to recognise the autism underlying it even though "autism' should have been screaming at them from my every interaction with them. That I forgive. Johari's window and all that...I did not know I was autistic and they had inadequate training to know. That they never listened to me and made a 1001 mistakes in my so called "care" and seem to have a blame the patient culture, I do NOT forgive.

Finally, having figured out my autism for myself, having spent a small fortune on assessments and autism informed counselling myself, and just starting to get some progress now after so much battling I've been in total burn out...something came to light today by total accident, which has me apologetic with rage...

In respect of my divorce my solicitor asked for a GP's letter...only as a consequence of that do I discover that in 2019, those services made a diagnosis of "emotionall unstable personality disorder", which only on googling do I discover is the same as "borderline personality disorder". 

Obviously, there are some people who do have both. And I mean no disrespect to those who have to combat both ASD and BPD,  but I know the latter is a misdiagnosis because they didn't understand the ASD/PTSD in my case.

Point is, how in God's name is it possible for a diagnosis to exist on my record WITHOUT anyone EVER having told me!??? How am I hearing it even exists by accident??? Surely to God, that's not just the most monumental of *** ups, but completely unethical.

I once reached out to MH because the person l love most in all the world was in danger. They let me down and I was traumatised. Despite that, I reached out because I was in distress. And they betrayed me. BPD??? Which one of us is sick here? Me? Or the effing service? I am re-traumatised.

I have enough trouble just now trying to find a safe way to access general medical care and negotiating a divorce with out having to fight this battle too. I'm starting to think I really need to protect myself somehow from the people who are supposed to help?

Any advice on how MH should behave, and what to do now, appreciated.

Parents
  • As shocking as this, it doesn’t surprise me. There is no communication between these ‘mental health services’ and GPS; or anyone else for that matter. It wouldn’t surprise me either to find it that your GP didn’t even know. Didn’t bother reading notes, or thinking to let you know the same time they found out!

    This story is so common. BPD is the top choice diagnosis these days where emotional women are concerned! I feel your distress.

    Number one, get your records. If they try to charge you, refuse, and this too can be reported. 

  • The GPs have all changed since this diagnosis was made. Their staff are being quite good. The fault is with MH. They are dealing as GDPR subject access - no charge.

    My beef is firmly with MH. My GP, I think, has unwittingly revealed something MH intended to hide from me. But now I have my ASD diagnosis they are being super helpful. I have hope.

    Trust me, all Hell is about to blow in the direction of MH with my ASD justice fuelled ire and I am never going back to MH services again. I have to do this for my protection and for the protection of every other one of us who has been subject to damaging but hidden misdiagnoses and lack of care.

    I'm on it guys. I'm on it for all of us.

    There ain't nothing like an Aspie in pursuit of justice. We were blessed with highened morality and hyperfocus for a reason. Just ask that fabulous young woman, Greta, lol.

  • There ain't nothing like an Aspie in pursuit of justice.

    Don’t I know it! Give ‘em hell and high fury!

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