I’m anxious that I don’t have autism.

Hi everyone,

I’ve recently come to realise that I may have autism, and having spent some time researching, reading stories of other people who are autistic, and having taken several different online self assessments (each with 30 questions) which have highlighted I am highly likely to be on the autistic spectrum, I feel like there are so many things that now make sense to me. My wife also feels hugely relieved and positive about a possible diagnosis as it could really help with our relationship. 

However, I now feel very anxious about the “what if I was assessed and told that I am not autistic”. I’ll then feel like I don’t know why I am the way I am, and I’ll possibly feel worse than before, before making any connection to a possibly diagnosis. Here are some of the things I’ve written down that appear to put me somewhere on the spectrum.  

  • I become obsessed and completely consumed by certain things, such as a hobby/interest or when purchasing a house for example. When I obsess over something, it’s all I can focus on and think about, even if it’s a low priority. In the above two examples: 1) When buying my house, all I could think about day to day for months was getting things sorted for solicitors, the estate agent, the mortgage advisor, looking at the house I was buying over and over again, thinking about it constantly, for weeks/months on end. 2) I recently took up tennis, and I think about it constantly. I watch videos on techniques when I should be working, I put it on the TV when it’s live, I’m having 1-2-1 lessons as well as class lessons and I’m playing 4-5 times a week. People laugh and say “you’re obsessed” and I say “I know”, and I am, but I’ve normalised this in my self because it’s how I am with anything I am interested in or have a focus on. 
  • I am incredibly solution focused, and instead of showing empathy, I look straight away for a solution. if my wife is upset about something, I try to offer solutions to her problems, even if she’s not asked for that, when all she actually wants is comfort and empathy. I find it really difficult to understand why anyone wouldn’t want a solution and would just want comfort instead. All I ever want to receive or to give is just solutions, that’s what I think is most helpful
  • When travelling somewhere, I think about everything in absolute minute detail, especially if it’s somewhere I’ve been before. I visualise everything in detail, such as not only where I’m going to park, but exactly how I’m going to park. I get extremely anxious if I’m late and extremely stressed and upset if things aren’t going to plan. I like to know exact details, otherwise I find I’m very stressed.
  • I interrupt people who are talking to me, because I think I know what they’re going to say and I can’t wait any longer to respond. I like to do everything as efficiently as possible and in the most effective and fastest method possible, and I think that once I know what someone is going to say, there’s no point in waiting for them to finish. I know it’s rude, and I realise afterwards, and it’s not even as though I’m in a rush to end the conversation. Ironically, I also end up repeating what I’m saying a few times before finishing talking, but I only realise I’ve done this afterwards, or maybe I realise on the 3rd 4th time I’m saying it and then stop.
  • I spend time thinking about what I’m going to say back to the person, instead of listening to what they’re saying. I think this is because I don’t want to forget the point I was going to make, and that once I’m thinking about something, I find it hard to refocus. I also visualise everything in picture form or movie form in my head as someone is talking to me, especially if they’re describing something in a level of detail. This possibly effects my ability to listen to them properly, I’m not sure.
  • I find hearing people in loud-ish environments almost impossible. If I’m out with a group of people at a bar/pub, I look around at everyone having completely normal conversations and appearing to not struggle at all, whereas I’m sat just nodding and smiling and trying to pretend like I can hear the person speaking to me, when I actually can’t hear a word they’re saying. I think I’m distracted by other conversations and noises, they appear louder to me maybe, and it stops me from being able to hear the person talking to me.
  • I find it really difficult to engage or start conversation in a social group situation, especially if there’s someone there who I know talks a lot, I end up being very introvert and would prefer to just listen to everyone else than say anything myself.
  • I think that if I’ve had a heavily stimulated day or stressful day, I like to do things like shake my leg or bounce my foot to help me to relax. I find playing a video game or watching something I’ve seen a million times helps me to switch off. Speaking of which, I know the entire transcript to multiple films, such as Dodgeball, Pretty Women, Home Alone 1 and 2, Road Trip, Dude Where’s My Car, A Bronx Tale, there’s quite a few, where I’ve just seen them over and over again because it helps me relax to hear something I’m familiar with.

The reason I feel like I won’t be diagnosed as autistic is because so much of the diagnostic criteria seem to point to extreme social difficulties and stunted development from a child. I don’t really have this, apart from the bits above that relate to some social scenarios. 


Id love to hear from anyone who can relate, offer advice or support. Thanks for reading. X

  • tbh id prefer living closer to rivington, but always more expensive to get up there and i filter searches with 100k as max price.

  • Hi RB, I can relate to everything you said and I had the same fears about going for my diagnosis but I had to know so this is how I rationalised it in my mind - I decided that if I had the assessment & it said I wasn’t, then that wasn’t necessarily true as the assessor could have missed something etc, so I decided that if that was the outcome it was ok because I could assess the situation again at that stage and decide that if I still believed I was on the spectrum I could ask for a second opinion or go elsewhere for another assessment etc. 

    Basically I think I was making it ok in my mind if I didn’t get the outcome I wanted and also, I thought well if it really isn’t autism then I would be a step closer to finding out what it was and despite my fears, the need to know was greater so I went ahead and got the diagnosis and it really is one of the best things I’ve ever done. Although to be honest, just asking for the assessment was the best thing I think I’ve ever done as I felt like I was really standing up for myself for the first time in my life and that one act of asking for the assessment has definitely helped me to continue standing up for myself. 

    I know lots of people self identify as being on the spectrum and I think that’s totally ok if people are ok with that but it’s like I needed that assessment and I’m glad I did go ahead. 

  • I know Wingates very well; I lived there for a while, and Westhoughton is my home town. The only thing that keeps me here is being so close to Rivington, otherwise I'd move back to Westhoughton in a heartbeat if I could.

  • I don't think people wish to be autistic because it makes them trendy.

  • Hi Kstar. Thanks your writing a reply! That's definitely how I have been feeling, with the same position and experiences as you it seems. It's so relieving to hear from others in a similar boat. 

    What a massive relief that must have been for you today! Wow. Thanks so much, and good luck to you also. 

  • Hi RB, I experienced the same anxiety when waiting for my diagnosis, after all I'm independent, a home owner, I drive, and have a decent job, so how could I possibly be autistic?

    But deep down I just knew I wasn't quite wired up right, I've had to work harder to get where I am,  I learned over time how to hide it, how to act appropriately, and it is an act, I'm an actor, acting how people think I should behave, for acceptance and to hold on to my job, learned from the inappropriate ways I've behaved previously after upsetting or alarming people.

    Even if you don't get diagnosed autistic, you may discover some other reason that makes you special or unique.

    I got diagnosed autistic today, it was a huge relief to me, good luck with journey of self discovery.

  • i go through aspul for my saturday shift which is based at the westhoughton branch at wingates industrial estate. if this job becomes permanent thinking of getting mortgage and maybe move to either aspul, hindley or horwich as its closer for me to the work areas.

  • I can relate to what you say about not considering the possibility of autism, RB. When I received the call from the Assessment Team with a positive diagnosis, I was so surprised that I lost my balance and almost fell over. The fact I had gone for an assessment was in itself only because of a chance encounter with a psychologist with experience in autism, and because of his insistence on referring me. I was seeing him for something unrelated (I been diagnosed with—and treated for—generalised anxiety disorder for many years). I remember finding some of his questions rather odd in the context of a standard medication review. Now, I realise that he was actually conducting his own mini-assessment during our appointment, though I didn't know that at the time. 

    In terms of the doubt about the results, I have to say that I never thought about the assessment—which I only went through out of curiosity— right up until it came around.

    Fast forward to today.

    Since my diagnosis, I've received a lot of support from an autism specialist and my life has dramatically changed for the better with this new understanding of why I behave and think the way I do. It's given me a new way of looking at the many aspects of my life that used to cause me so much distress (inability to hold down a job or follow a career path, constant social faux-pas, inability and unwillingness to maintain an intimate relationship, and a shaky educational background).  I'd come to the conclusion that I'd failed in all these areas and each failure had become a source of embarrassment and regret to me. 

    I'm almost 50 now, so it makes me glad that not everyone has to wait as long as me to be able to make some sense of their lives, and can get a chance to be able to live out the rest of their days in a kinder, more compassionate relationship with themselves. 

    Good luck!

  • I'm catching the 575 today to go to the dentist (in Aspull). It runs straight thru from Wigan to Bolton.

  • no diagnosis as in my day at school we didnt hand them out like free candy to every kid in the world. but no doubt if i was a kid in school these days id have been given ADHD, ADD, BPD, LMFAO, LGBT and all that jazz.

    instead i had actual effects/symptoms that made me a total loner and outcast (which i see your not given you managed to get close to the social crowd to get a girlfriend judging by your profile pic i cant do that not even get basic friends or insert myself into any crowd) unable to get on at all and feeling like the only person in the world, like a alien among humans, like oil among water. yet i didnt get diagnosed as diagnosis frenzy only came in later when it became a popular cool kid thing to have a alphabetti spagetti label lol of which now its cool ofcourse then im not allowed in that club again lol so yeah labels can sod off, i hate pop culture and sheepishly following the trend. i am who i am, and i am a individual among NPC robot hive followers, one of a kind. 

  • would be slightly too far. bolton or warrington theyd be.£10 to £12 a hour for the same job im doing that is only paying me £8.91 per hour and yet they have easier job and increase our work to make their work very easy.

  • Also, before my diagnosis, I went through phases of "yes I definitely am autistic" to "who the hell do I think I am, thinking I'm on the spectrum?" This usually correlated with how easy or difficult I was finding life. One thing, when I started talking to people "i think i might be on the spectrum because..." they'd say "oh well I do that too". It was really difficult because I knew deep down it was different for me but couldn't explain why. But going back to what you say about putting in the extra effort. That is what it is. So I come across as "normal" to others, but it's all the extra brain power making up for it (working out social situations rather than intuitively knowing stuff.......). This creates anxiety and stress. For some, autism can be quite "internal" without many obvious "external" behaviouors. Have you read about masking? You might be masking but not aware of it.

    Executive function difficulties isn't just for people on the spectrum, but I think it's common. I like Yo Samdy Sam on youtube - while I find I cannot relate 100% to anyone or anything I've read about AS, she is the one who I can relate mostly to. I think she works in collaboration with a guy called Aspergers from the Inside. These people might be useful for you to look at. And they also talk about executive function. There's also Purple Ella but I don't watch much of her stuff.

    I too find it difficult sometimes to turn my mood around. Often if I cannot explain or identify why something has sent me that way. (This is getting a bit easier now I understand more what sets me off). I can often get "stuck" on feeling a certain way or having a certain thought.

    I can identify with what you say about moving house and how you feel about your interests. Also how you watch the same films as comfort (for me, it's music).

    You feel more comfortable around females....I do as they usually talk more (I am female myself) so give more social cues, however I find males more straightforward and easier to deal with.

  • This is super interesting! Reading your words is honestly like reading a description of myself, in most ways! I had no idea about “executive function”, so I’ve started looking at that. Did a quick onine test and scored very high, suggestion was to seek professional help, so that’s interesting! I also love your coping strategy for if something is unexpected. I will make an effort to try this, more often than not, I can find myself so worked up and angry about the change, it can ruin the day, and I just find it so difficult to turn my mood around, no matter how much I tell myself to try. I’ll also look into the female autistic presentation and atypical, that’s really interesting. I have no idea if it’s connected at all, but I feel way more comfortable around females than males. I feel like I can be myself more - this may be totally unrelated to what you’re talking about though. Slight smile

  • It could be that we are nature's attempt to reinsert versatility into human species, to counteract human society tendency towards smaller and smaller standard deviations

  • Last 15 years I was working continuously, changing jobs, when needed. in every single one of them I had to work twice harder then any other NT at the same position, just to be accepted, it worked only as long as I made no objections.

    so, it is what it is 

    instead I think:

    poor lazy people, they will probably develop schizofrenia at 50, cause their brains will soon forget how to switch on. :P

  • Self identifying.......made me realise more about how I deal with uncertainty and how rigid I can be ("I'm spontaneous me! err... yeah only if it's on my terms.........) The big one, was it also helped me realise why I find social situations difficult. I was having CBT during lockdown and I thought I need to know if it was anxiety or more than that. I wanted to know officially because then I would feel more comfortable asking for help if I needed it and also to help inform my mental health. I feel people would take it more seriously if I had a piece of paper. I wasn't wanting a label but I wanted to know for myself. I don't think anyone wants to be on the spectrum. I have spent a long time trying to figure myself out.

    Having had my assessment report and discussion with the assessor, and also copious amounts of self reflection has further helped me realise how aspergers affects me in ways I had never considered before my diagnosis. (I do have days where I doubt my diagnosis but that's usually when I feel like I'm winning at life). One of the things I didn't consider much was executive function difficulties and the ways this can manifest (not just in carrying out tasks but in my thoughts as well).

    Last week something happened which was unexpected....it wasn't a big deal. But i dealt with it by saying "i just need time to adjust then I'll be ok". . I think a few years ago I would've gone in a strange mood, taken it out on my partner and just spoilt the day. But now I understand myself more, I was able to deal with it in a much better way. It sounds like you have a very supportive partner yourself.

    I think I've realised that I have to work incredibly hard to cope with this, and that it's not normal to have to work so hard to be 'normal' - if you know what I mean? 

    Yes I do and I think you've hit the nail on the head. For many different neurodiverse types...brains can work incredibly hard to compensate for this so no-one notices anything different.

    It's just my opinion but it might be that you resonate more with the "female" presentation of autism (which I think is actually an "atypical" presentation and not just for females). So you could look into this too.

  • Thanks Aidie,

    This is really helpful again. I actually tick almost all of the attributes of adult ADHD symptoms also, and I did read it's often the case for someone autistic to also have ADHD. I have a younger sister who I hadn't realised until today, had told my mum she thought she might have autism, but she struggles more socially I think than I do, or perhaps I've found ways to work through my anxieties more effectively to date, not sure.

    I can't recall anyone telling me that I was weird or different, but maybe they thought it! I've since spoken with my mum and she has been very supportive, and thinks that it would explain certain things. 

  • the online tests are a very good indicator, plus some of the traits you have listed. But ultimately it is up to a professional to diagnose you ----- u just to fit the pattern of 

    tests say so + list of  traits = high prob of autism  >> then later we hear "actual diagnosis of autism"

    only thing you haven't mentioned and it is important for any diagnostic team,, 

    1. are there any members of your family called 'weird'/ eccentric or with autism/ADHD diagnosis. create a list if there are.

    2. has anyone every said to you or say your mum that you where different/weird/autistic ? keep a list ready

  • Thanks aidie, is this based on your own experience, knowledge or something else? I'd love to know your thoughts on this? Many thanks