I’m anxious that I don’t have autism.

Hi everyone,

I’ve recently come to realise that I may have autism, and having spent some time researching, reading stories of other people who are autistic, and having taken several different online self assessments (each with 30 questions) which have highlighted I am highly likely to be on the autistic spectrum, I feel like there are so many things that now make sense to me. My wife also feels hugely relieved and positive about a possible diagnosis as it could really help with our relationship. 

However, I now feel very anxious about the “what if I was assessed and told that I am not autistic”. I’ll then feel like I don’t know why I am the way I am, and I’ll possibly feel worse than before, before making any connection to a possibly diagnosis. Here are some of the things I’ve written down that appear to put me somewhere on the spectrum.  

  • I become obsessed and completely consumed by certain things, such as a hobby/interest or when purchasing a house for example. When I obsess over something, it’s all I can focus on and think about, even if it’s a low priority. In the above two examples: 1) When buying my house, all I could think about day to day for months was getting things sorted for solicitors, the estate agent, the mortgage advisor, looking at the house I was buying over and over again, thinking about it constantly, for weeks/months on end. 2) I recently took up tennis, and I think about it constantly. I watch videos on techniques when I should be working, I put it on the TV when it’s live, I’m having 1-2-1 lessons as well as class lessons and I’m playing 4-5 times a week. People laugh and say “you’re obsessed” and I say “I know”, and I am, but I’ve normalised this in my self because it’s how I am with anything I am interested in or have a focus on. 
  • I am incredibly solution focused, and instead of showing empathy, I look straight away for a solution. if my wife is upset about something, I try to offer solutions to her problems, even if she’s not asked for that, when all she actually wants is comfort and empathy. I find it really difficult to understand why anyone wouldn’t want a solution and would just want comfort instead. All I ever want to receive or to give is just solutions, that’s what I think is most helpful
  • When travelling somewhere, I think about everything in absolute minute detail, especially if it’s somewhere I’ve been before. I visualise everything in detail, such as not only where I’m going to park, but exactly how I’m going to park. I get extremely anxious if I’m late and extremely stressed and upset if things aren’t going to plan. I like to know exact details, otherwise I find I’m very stressed.
  • I interrupt people who are talking to me, because I think I know what they’re going to say and I can’t wait any longer to respond. I like to do everything as efficiently as possible and in the most effective and fastest method possible, and I think that once I know what someone is going to say, there’s no point in waiting for them to finish. I know it’s rude, and I realise afterwards, and it’s not even as though I’m in a rush to end the conversation. Ironically, I also end up repeating what I’m saying a few times before finishing talking, but I only realise I’ve done this afterwards, or maybe I realise on the 3rd 4th time I’m saying it and then stop.
  • I spend time thinking about what I’m going to say back to the person, instead of listening to what they’re saying. I think this is because I don’t want to forget the point I was going to make, and that once I’m thinking about something, I find it hard to refocus. I also visualise everything in picture form or movie form in my head as someone is talking to me, especially if they’re describing something in a level of detail. This possibly effects my ability to listen to them properly, I’m not sure.
  • I find hearing people in loud-ish environments almost impossible. If I’m out with a group of people at a bar/pub, I look around at everyone having completely normal conversations and appearing to not struggle at all, whereas I’m sat just nodding and smiling and trying to pretend like I can hear the person speaking to me, when I actually can’t hear a word they’re saying. I think I’m distracted by other conversations and noises, they appear louder to me maybe, and it stops me from being able to hear the person talking to me.
  • I find it really difficult to engage or start conversation in a social group situation, especially if there’s someone there who I know talks a lot, I end up being very introvert and would prefer to just listen to everyone else than say anything myself.
  • I think that if I’ve had a heavily stimulated day or stressful day, I like to do things like shake my leg or bounce my foot to help me to relax. I find playing a video game or watching something I’ve seen a million times helps me to switch off. Speaking of which, I know the entire transcript to multiple films, such as Dodgeball, Pretty Women, Home Alone 1 and 2, Road Trip, Dude Where’s My Car, A Bronx Tale, there’s quite a few, where I’ve just seen them over and over again because it helps me relax to hear something I’m familiar with.

The reason I feel like I won’t be diagnosed as autistic is because so much of the diagnostic criteria seem to point to extreme social difficulties and stunted development from a child. I don’t really have this, apart from the bits above that relate to some social scenarios. 


Id love to hear from anyone who can relate, offer advice or support. Thanks for reading. X

Parents
  • I felt the same too before my assessment. I've read quite a few similar accounts on here. I come across in life as without any difficulties but I know that's not the case. A lot of the official information on the Web seems to talk about stereotypical behaviours, but the more you read around or watch youtube about personal accounts,  you'll find this isn't always the case.

    If it's not AS they should still be able to give you information. For me, leading up to asking for an assessment, because I already self identified with AS, I was able to put in coping strategies and start to understand why things were difficult. Since my diagnosis, this element has got stronger, thus I can cut myself some slack now i know im aspergers. My partner is far more understanding now and we communicate better and laugh more. 

    How does the potential autism affect your life? Your day to day life? For me, it's mainly anxiety.

    If you don't go for an assessment though, you'll never know. If you feel the need to look into why you feel different, it's probably because you are. I don't know any "typical" people who have researched why they are the way they are as much as I have.

  • Hi out_of_step. Thank you so much for replying and for your openness and honesty. It's really comforting to hear from someone who comes across in life as someone without any difficulties. I think this is what puts doubt in mind. 

    How did you find self identifying as someone with AS? Did you find this enough, or like me, did you just want a professional to confirm it for you? It's amazing to hear that since your diagnosis, you and your partner are able to communicate better and you're better understood. That's so lovely to hear, especially being able to laugh more too. :) 

    The potential autism mostly affects my productivity, due to distraction or obsession, and I find it difficult to be empathic, rather than offering solutions. I also find the anxiety of going somewhere, old or new, and seeing people, a challenge. I think I've realised that I have to work incredibly hard to cope with this, and that it's not normal to have to work so hard to be 'normal' - if you know what I mean? 

    Thanks again.

  • Self identifying.......made me realise more about how I deal with uncertainty and how rigid I can be ("I'm spontaneous me! err... yeah only if it's on my terms.........) The big one, was it also helped me realise why I find social situations difficult. I was having CBT during lockdown and I thought I need to know if it was anxiety or more than that. I wanted to know officially because then I would feel more comfortable asking for help if I needed it and also to help inform my mental health. I feel people would take it more seriously if I had a piece of paper. I wasn't wanting a label but I wanted to know for myself. I don't think anyone wants to be on the spectrum. I have spent a long time trying to figure myself out.

    Having had my assessment report and discussion with the assessor, and also copious amounts of self reflection has further helped me realise how aspergers affects me in ways I had never considered before my diagnosis. (I do have days where I doubt my diagnosis but that's usually when I feel like I'm winning at life). One of the things I didn't consider much was executive function difficulties and the ways this can manifest (not just in carrying out tasks but in my thoughts as well).

    Last week something happened which was unexpected....it wasn't a big deal. But i dealt with it by saying "i just need time to adjust then I'll be ok". . I think a few years ago I would've gone in a strange mood, taken it out on my partner and just spoilt the day. But now I understand myself more, I was able to deal with it in a much better way. It sounds like you have a very supportive partner yourself.

    I think I've realised that I have to work incredibly hard to cope with this, and that it's not normal to have to work so hard to be 'normal' - if you know what I mean? 

    Yes I do and I think you've hit the nail on the head. For many different neurodiverse types...brains can work incredibly hard to compensate for this so no-one notices anything different.

    It's just my opinion but it might be that you resonate more with the "female" presentation of autism (which I think is actually an "atypical" presentation and not just for females). So you could look into this too.

  • Also, before my diagnosis, I went through phases of "yes I definitely am autistic" to "who the hell do I think I am, thinking I'm on the spectrum?" This usually correlated with how easy or difficult I was finding life. One thing, when I started talking to people "i think i might be on the spectrum because..." they'd say "oh well I do that too". It was really difficult because I knew deep down it was different for me but couldn't explain why. But going back to what you say about putting in the extra effort. That is what it is. So I come across as "normal" to others, but it's all the extra brain power making up for it (working out social situations rather than intuitively knowing stuff.......). This creates anxiety and stress. For some, autism can be quite "internal" without many obvious "external" behaviouors. Have you read about masking? You might be masking but not aware of it.

    Executive function difficulties isn't just for people on the spectrum, but I think it's common. I like Yo Samdy Sam on youtube - while I find I cannot relate 100% to anyone or anything I've read about AS, she is the one who I can relate mostly to. I think she works in collaboration with a guy called Aspergers from the Inside. These people might be useful for you to look at. And they also talk about executive function. There's also Purple Ella but I don't watch much of her stuff.

    I too find it difficult sometimes to turn my mood around. Often if I cannot explain or identify why something has sent me that way. (This is getting a bit easier now I understand more what sets me off). I can often get "stuck" on feeling a certain way or having a certain thought.

    I can identify with what you say about moving house and how you feel about your interests. Also how you watch the same films as comfort (for me, it's music).

    You feel more comfortable around females....I do as they usually talk more (I am female myself) so give more social cues, however I find males more straightforward and easier to deal with.

  • This is super interesting! Reading your words is honestly like reading a description of myself, in most ways! I had no idea about “executive function”, so I’ve started looking at that. Did a quick onine test and scored very high, suggestion was to seek professional help, so that’s interesting! I also love your coping strategy for if something is unexpected. I will make an effort to try this, more often than not, I can find myself so worked up and angry about the change, it can ruin the day, and I just find it so difficult to turn my mood around, no matter how much I tell myself to try. I’ll also look into the female autistic presentation and atypical, that’s really interesting. I have no idea if it’s connected at all, but I feel way more comfortable around females than males. I feel like I can be myself more - this may be totally unrelated to what you’re talking about though. Slight smile

Reply
  • This is super interesting! Reading your words is honestly like reading a description of myself, in most ways! I had no idea about “executive function”, so I’ve started looking at that. Did a quick onine test and scored very high, suggestion was to seek professional help, so that’s interesting! I also love your coping strategy for if something is unexpected. I will make an effort to try this, more often than not, I can find myself so worked up and angry about the change, it can ruin the day, and I just find it so difficult to turn my mood around, no matter how much I tell myself to try. I’ll also look into the female autistic presentation and atypical, that’s really interesting. I have no idea if it’s connected at all, but I feel way more comfortable around females than males. I feel like I can be myself more - this may be totally unrelated to what you’re talking about though. Slight smile

Children
  • Also, before my diagnosis, I went through phases of "yes I definitely am autistic" to "who the hell do I think I am, thinking I'm on the spectrum?" This usually correlated with how easy or difficult I was finding life. One thing, when I started talking to people "i think i might be on the spectrum because..." they'd say "oh well I do that too". It was really difficult because I knew deep down it was different for me but couldn't explain why. But going back to what you say about putting in the extra effort. That is what it is. So I come across as "normal" to others, but it's all the extra brain power making up for it (working out social situations rather than intuitively knowing stuff.......). This creates anxiety and stress. For some, autism can be quite "internal" without many obvious "external" behaviouors. Have you read about masking? You might be masking but not aware of it.

    Executive function difficulties isn't just for people on the spectrum, but I think it's common. I like Yo Samdy Sam on youtube - while I find I cannot relate 100% to anyone or anything I've read about AS, she is the one who I can relate mostly to. I think she works in collaboration with a guy called Aspergers from the Inside. These people might be useful for you to look at. And they also talk about executive function. There's also Purple Ella but I don't watch much of her stuff.

    I too find it difficult sometimes to turn my mood around. Often if I cannot explain or identify why something has sent me that way. (This is getting a bit easier now I understand more what sets me off). I can often get "stuck" on feeling a certain way or having a certain thought.

    I can identify with what you say about moving house and how you feel about your interests. Also how you watch the same films as comfort (for me, it's music).

    You feel more comfortable around females....I do as they usually talk more (I am female myself) so give more social cues, however I find males more straightforward and easier to deal with.