I’m anxious that I don’t have autism.

Hi everyone,

I’ve recently come to realise that I may have autism, and having spent some time researching, reading stories of other people who are autistic, and having taken several different online self assessments (each with 30 questions) which have highlighted I am highly likely to be on the autistic spectrum, I feel like there are so many things that now make sense to me. My wife also feels hugely relieved and positive about a possible diagnosis as it could really help with our relationship. 

However, I now feel very anxious about the “what if I was assessed and told that I am not autistic”. I’ll then feel like I don’t know why I am the way I am, and I’ll possibly feel worse than before, before making any connection to a possibly diagnosis. Here are some of the things I’ve written down that appear to put me somewhere on the spectrum.  

  • I become obsessed and completely consumed by certain things, such as a hobby/interest or when purchasing a house for example. When I obsess over something, it’s all I can focus on and think about, even if it’s a low priority. In the above two examples: 1) When buying my house, all I could think about day to day for months was getting things sorted for solicitors, the estate agent, the mortgage advisor, looking at the house I was buying over and over again, thinking about it constantly, for weeks/months on end. 2) I recently took up tennis, and I think about it constantly. I watch videos on techniques when I should be working, I put it on the TV when it’s live, I’m having 1-2-1 lessons as well as class lessons and I’m playing 4-5 times a week. People laugh and say “you’re obsessed” and I say “I know”, and I am, but I’ve normalised this in my self because it’s how I am with anything I am interested in or have a focus on. 
  • I am incredibly solution focused, and instead of showing empathy, I look straight away for a solution. if my wife is upset about something, I try to offer solutions to her problems, even if she’s not asked for that, when all she actually wants is comfort and empathy. I find it really difficult to understand why anyone wouldn’t want a solution and would just want comfort instead. All I ever want to receive or to give is just solutions, that’s what I think is most helpful
  • When travelling somewhere, I think about everything in absolute minute detail, especially if it’s somewhere I’ve been before. I visualise everything in detail, such as not only where I’m going to park, but exactly how I’m going to park. I get extremely anxious if I’m late and extremely stressed and upset if things aren’t going to plan. I like to know exact details, otherwise I find I’m very stressed.
  • I interrupt people who are talking to me, because I think I know what they’re going to say and I can’t wait any longer to respond. I like to do everything as efficiently as possible and in the most effective and fastest method possible, and I think that once I know what someone is going to say, there’s no point in waiting for them to finish. I know it’s rude, and I realise afterwards, and it’s not even as though I’m in a rush to end the conversation. Ironically, I also end up repeating what I’m saying a few times before finishing talking, but I only realise I’ve done this afterwards, or maybe I realise on the 3rd 4th time I’m saying it and then stop.
  • I spend time thinking about what I’m going to say back to the person, instead of listening to what they’re saying. I think this is because I don’t want to forget the point I was going to make, and that once I’m thinking about something, I find it hard to refocus. I also visualise everything in picture form or movie form in my head as someone is talking to me, especially if they’re describing something in a level of detail. This possibly effects my ability to listen to them properly, I’m not sure.
  • I find hearing people in loud-ish environments almost impossible. If I’m out with a group of people at a bar/pub, I look around at everyone having completely normal conversations and appearing to not struggle at all, whereas I’m sat just nodding and smiling and trying to pretend like I can hear the person speaking to me, when I actually can’t hear a word they’re saying. I think I’m distracted by other conversations and noises, they appear louder to me maybe, and it stops me from being able to hear the person talking to me.
  • I find it really difficult to engage or start conversation in a social group situation, especially if there’s someone there who I know talks a lot, I end up being very introvert and would prefer to just listen to everyone else than say anything myself.
  • I think that if I’ve had a heavily stimulated day or stressful day, I like to do things like shake my leg or bounce my foot to help me to relax. I find playing a video game or watching something I’ve seen a million times helps me to switch off. Speaking of which, I know the entire transcript to multiple films, such as Dodgeball, Pretty Women, Home Alone 1 and 2, Road Trip, Dude Where’s My Car, A Bronx Tale, there’s quite a few, where I’ve just seen them over and over again because it helps me relax to hear something I’m familiar with.

The reason I feel like I won’t be diagnosed as autistic is because so much of the diagnostic criteria seem to point to extreme social difficulties and stunted development from a child. I don’t really have this, apart from the bits above that relate to some social scenarios. 


Id love to hear from anyone who can relate, offer advice or support. Thanks for reading. X

  • Hi out_of_step. Thank you so much for replying and for your openness and honesty. It's really comforting to hear from someone who comes across in life as someone without any difficulties. I think this is what puts doubt in mind. 

    How did you find self identifying as someone with AS? Did you find this enough, or like me, did you just want a professional to confirm it for you? It's amazing to hear that since your diagnosis, you and your partner are able to communicate better and you're better understood. That's so lovely to hear, especially being able to laugh more too. :) 

    The potential autism mostly affects my productivity, due to distraction or obsession, and I find it difficult to be empathic, rather than offering solutions. I also find the anxiety of going somewhere, old or new, and seeing people, a challenge. I think I've realised that I have to work incredibly hard to cope with this, and that it's not normal to have to work so hard to be 'normal' - if you know what I mean? 

    Thanks again.

  • Hi Tassimo,

    Thanks so much for your response. I am mostly seeking the support from others who may have been in a similar situation to me. This is all very new to me, and up until recently, I really didn't ever consider the fact that I may be autistic, or have any other condition for that matter. It's helpful to me to hear other peoples stories that could be similar, I will find comfort in that, I'm sure. 

    Thank you for the advise around the assessment side of things also. This is really helpful. I will certainly try to be kind to myself in the mean time, and will try to do more mindfulness and give myself more breathing space. :) Thanks again.

  • Caelus, is this true for you? Do you have any diagnosis, or do you simply identify as an individual human?

    And, as for my wife, she is an absolute saint and loves me and accepts me for who I am, she always has done, no matter how difficult I can be sometimes. Having a 'label' as it were, I'm sure will help us both understand the things that I find challenging, and how to communicate and work through certain situations better. I don't expect you to understand this though, as your response clearly suggestions you do not.

  • odds of u being autistic i would say are around 95% 

  • I felt the same too before my assessment. I've read quite a few similar accounts on here. I come across in life as without any difficulties but I know that's not the case. A lot of the official information on the Web seems to talk about stereotypical behaviours, but the more you read around or watch youtube about personal accounts,  you'll find this isn't always the case.

    If it's not AS they should still be able to give you information. For me, leading up to asking for an assessment, because I already self identified with AS, I was able to put in coping strategies and start to understand why things were difficult. Since my diagnosis, this element has got stronger, thus I can cut myself some slack now i know im aspergers. My partner is far more understanding now and we communicate better and laugh more. 

    How does the potential autism affect your life? Your day to day life? For me, it's mainly anxiety.

    If you don't go for an assessment though, you'll never know. If you feel the need to look into why you feel different, it's probably because you are. I don't know any "typical" people who have researched why they are the way they are as much as I have.

  • Is it possible to get a transfer to the bigger branch or is too far to travel?

  • still ok, although bosses of other branchs keep forcing us to make changes and increase our work load to make their work easier in their bigger branch, despite their bigger branch paying double to their workers for the same job they decide to make our work load more to make theirs less. gets a bit annoying like that due to stuck up bosses and lazy people from stuck up bigger branches that dont wanna do their job so make our job harder despite them being paid way more.

  • Hello, RB.

    The uncertainty you are experiencing (and the uncomfortable feelings it produces) is a natural reaction when you are having any kind of assessment and are awaiting the result. Especially one such as this where the personal and emotional stakes are high. 

    What advice are you asking for exactly? It's not clear to me.  Are you wanting an opinion on whether you are autistic (based on what you have written)? If so, then based purely on what you have written, you have described some classic autistic traits.

    Or, are you asking for advice about what to do if the assessment finds that you are not autistic? If you disagree with the diagnosis then are entitled to ask for a second opinion. Or, if you are convinced you are autistic, you can now pay for a private diagnosis (a quick google search will bring up locations and costs). 

    It's important to understand that although the current assessment model only provides a Yes/No result, there are different types of autism, and the spectrum of traits related to autism is—well, it is a spectrum, so it could be that you don't receive a diagnosis, but you do have the Broader Autism Phenotype (BAP). 

    Only time will tell, and I would urge you to be kind to yourself in the meantime and try to avoid too much rumination on the possible outcomes. It could feed your insecurity more and make you worry more. Stay in the present, use mindfulness techniques, develop some self-compassion and give yourself some breathing space. 

  • eh maybe you are the way you are and each and every one of us is different because we are individual humans and not a collective hive mind? lol

    as for your wife, i dunno how knowing what is wrong with you can make it better for her if she didnt accept the way you was before, why does having a label to tell her whats wrong with you make it any better for her when you will still always be that way? lol if she didnt like it before nothing will change even having a word to put to it. she just has to learn to accept who you are and cope.