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Getting a diagnosis

ACNH-2001
over 3 years ago

Hello! I am wishing to remain anonymous, but I am 19 years old and female (she/her pronouns) and since January 2020, I’ve been looking into the likelihood that I may have autism!

My younger half brother has already been diagnosed (he’s 10 next March), so I thought my mum would be super supportive, but she’s been the opposite. Because I’m not exactly the same as my brother, I apparently, according to her, don’t have autism. She doesn’t particularly know what traits I have as I’ve hardly mentioned anything to her since she’s so against me having it.

I got up the courage late October to actually call my doctors back home (I’m currently at University so living away from home) and got an appoint with a GP who referred me. The place where referrals normally go isn’t doing autism diagnosis’ anymore, nor referrals, so I got “referred” to somewhere else (basically got told to call this support team!). The autism support person for that centre is attempting to help me, but she’s missed two appointments with me and was late to the first one. No one knows (at this moment) where I’m meant to be getting referred to and it’s causing me so much more stress on top of everything with Uni and Covid. 

I am getting support off Uni though, due to me showing clear traits and being referred (they even asked for evidence of the referral letter which I found weird). I’m just finding everything super difficult right now, especially with the change of living independently with my boyfriend and the fear of the unknown (there’s been a lot of tension in the household as someone was having psychotic episodes and as well, I’ve lost count of how many times I’ve told them to keep the noise down late in the evening (around 11pm-2/3am) and they don’t listen!)

I was wondering if anyone had any advise because I’m really struggling with it and I don’t have a clue what else to do other than save up money and go private (which is my last resort since it’s a fortune and I have a car to run/food to buy etc). Sorry if there’s any spelling mistakes etc!

Parents
  • over 3 years ago

    Thank you so much for your reply!

    1. I didn’t know that was possible! Does this mean I would be allowed a hidden disability lanyard too or is that going too far?
    2. Ive got some reusable foam earplugs but recently I find myself taking them out because they hurt my ears (big sad)
    • already got a big list. some are traits and some are just “weird things” about myself
    • there’s only my brother (as far as i’m aware!) that has ADHD/autism (he got diagnosed with both i think i only put about his autism in the post!)
    • i genuinely can’t think of relatives tbh who have picked up on anything because they haven’t other than i deviate from the norms of society

    Thanks for the tips etc! i’ll look into things

  • over 3 years ago in reply to ACNH-2001

    ok use good ear defenders. i have a pair that have a built in radio --- i can also play white noise on them, or plug them into a music source with a cable

    search amazon for ProTear eardefenders

    www.amazon.co.uk/.../ref=sr_1_7

    but how are u getting on in uni ? what are u studying ?

  • over 3 years ago in reply to aidie

    thank you! Uni is going ok, I’m studying psychology, but finding the change hard to deal with! the topic has a LOT of stuff to learn and it’s hard to do it all. Plus it isn’t fun with my flatmates aaaa

  • over 3 years ago in reply to aidie

    haha thanks for clarifying i would’ve took it literally Sweat smile 

    I’m aiming to go into counselling psychology (but we will see what route things take me down)

    okiee, talk tomorrow 

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