Published on 12, July, 2020
Everyone experiences things differently, of that there is no doubt. I’d like to gain other people’s perspectives, to gain other people’s view on the neurotype which we have in common, Autism. Perhaps through sharing, we can gain insight and help each other, or perhaps it might just be cathartic for people to share, in any case:What does your Autism mean to you?
I’ll start by conveying what my Autism means to me:
My Autism means freedom, from expectations of fitting in with the majority of people. My Autism means that I’ve forgiven myself for being different/odd/weird. I am as I am, as long as I kind and caring towards others to the best of my ability then that is good enough for me. I do not need other people’s approval for the way my brain functions.
My Autism means that I’ve finally found where I belong. My diagnosis has opened up a world of other autistic people who ‘get it’, who I can speak with on the same level. It was of course, a world that was always there, I just didn’t realise that I belonged before.
My Autism means I have a unique insight into how my youngest daughter’s mind works (nearly 3, also Autistic, still pre-verbal). It means that I can read her, translate her non-verbal communication (which too be fair she’s pro at) into verbal communication for those that don’t understand her. My Autism means that I can advocate for her, with ‘inside knowledge’ to family, nursery staff, professionals, etc.
My Autism means that I can advocate for other Autistic people. At support groups for parents of Autistic children; When my Autistic friends are struggling to get to appointments or do other tasks.
My Autism means that I‘ve found a purpose building community within the Autistic population. It led me to start my group for other autistic women in my local area. Because members of any tribe are stronger together as opposed to being dotted around on their own. Through this group I also learn about a lot of resources for both autistic adults and children and I signpost people who I meet, whether it is the lonely autistic adult who needs to find a social group or the parent who doesn’t know what to do to help their child. I’d love to be able to take this whole advocacy thing further actually, to be able to make more of a difference to the access to resources for autistic people but this at present is just an idea.....
My autism means that I'm naturally 'Out there' and don't need alcohol, nicotine, or hallucinogens to 'trip.'
I have contact with the outside world, living in a rural location. But I have developed a niche who 'get' me.
I first knew about autism in 1991, whenever my mum read an article about kids with Asperger's Syndrome in a women's magazine and identified myself in what she was reading. Beforehand, I had 'special' tuition outside of my classroom - for behavioral reasons. But TV had too much power over me as a child. I hated being smacked as a child but can look back at that with no regrets. No one 'told' me what I was supposed to do; my father's death in the Troubles didn't help.
I always feel that kids with autism are thrown to the lions after they leave school/uni.
It's good that you've developed a niche who 'get' you.
How old were you when your father died?
I think that unless kids are 'high needs' then there is little support for them once they leave the education system, sadly!