*Autistic Shutdowns collection* - Do you experience these ?

Hi

I have been trying to work out if I am experiencing Shutdowns, I am still not sure 

I have been trying to find information online but its pretty unspecific. Very few videos about it either.

If you experience shutdowns, please

  1. list the symptoms
  2. describe the process you experience
  3. describe how you feel afterwards please
  4. what triggers it / is there always a trigger ?

I want to determine if I am indeed experiencing shutdowns.  

Get your experiences added to this collection  Thumbsup.

Thanks for any responses,advice,ideas

Parents
  • Thanks for this thread aidie, I've read through a lot of these and it's been very informative indeed. I have been very confused by these term melt down, shut down and burn out, also autistic catatonia.

    Speaking to my mother in preparation for my assessment, there seem to have been a lot of chilhood episodes when I withdrew into myself and became completely unresponsive (importantly including, but not exclusively when taken to the doctor), and many times I had explosive emotional outbursts over things she could not understand. And yet she is adamant I never threw the usual toddler tantrums because I could not have what I wanted. In that regard, I was a well behaved kid.

    As an adult, I have often had periods of an exhaustion and emotional or sensory overwhelm that I believe have caused something similar, but mostly (but not always) I've managed to get myself away and the consequences happened behind locked doors. Somehow, I think I've been managing them, such that other than the lost time, I've coped well enough to protect life's necessities like my job...but yes going into it one of the major things I notice is a feeling of distance from the world and an inability to absorb what is going on around me.

    There is one very dramatic, distressing and dangerous exception to the management of these things: medical situations!! I have a duel medical phobias; my own body on the one hand, but all medical environments, people and procedures on the other.

    Even as a 2 year old, my mother said I would refuse to speak to or otherwise respond to the doctor (fear induced shut down, or withdrawn type melt down???). As an adult faced with doctors something comes over me, the world seems a mile away, I can't make out anything said to me, it's all just a sea of voices boring into my brain, I can't speak, I'm suddenly acutely aware of the sensory things around me, the colour of an item of clothing, perhaps or a single bright light in the room and this becomes the only thing I am aware of. Then I am rooted to the spot and they can't move me, or I have an overwhelming impulse to run. There have been instances when staff have had to almost bash down toilet doors to get me out or call the police because I've bolted from the building. But I cannot remember much of what happened after that zone out. I rely mainly on what I am told afterward to know.

    Two years ago, they took 6 of my teeth under a general. For the first time, the moment of zone out included a rhythmic banging of my head against the wall. Afterward (K, I had been stuffed full of drugs by then), I bolted and headed straight to a major A road. They called police.

    I could not eat for days, I could not speak for almost three weeks. I felt ZERO pain but I was totally and constantly overpowered (still am) by the disgusting feel of my mouth.

    So many dental and doctors appointments since, or occasions when I have been pushed to be aware of my body, or illness and they are all resulting in something similar; rhythmically battering myself, shouting and effing and blinding (I would normally never do that), cut off my hair, taken sudden flight into the path of danger or with only one conscious thought in mind....I won't say it. 

    I have read that autistic melt down/shut down occurs when a situation is overwhelming and inescapable. Trapped between my body and them, yes this is inescapable!!

    I have been trying so hard to explain to MH services for years:

    • I do not want these episodes
    • There is very little or no conscious thought during them - I do not decide
    • I can't remember everything about them afterward
    • I can't communicate during them
    • I can't absorb anything said to me during them
    • The ONLY thing I feel is abject terror

    But they aren't listening. They keep twittering at me about controlling emotions. But there is only one unmanaged emotion here and it feels like there is no control for me to have. They keep asking me what's going on, when I can hardly speak, or if I can only single words will come out or else a tirade of expletives. Why did they think I would know what's going on? They've dismissed me as unwilling to explore my thoughts and emotions, but I can't tell them any more than is in those bullet points, because that's all I know and all I feel.

    They've responded through out as though I'm a horrible person who really could decide not to do this and have dismissed me as undeserving of any help. The last time I broke down like this in the doctor's, she was shouting at me to "stop it", but then phoned the crisis team, who spent 30 seconds on the phone telling me to ring the Semaritans. They won't even try to help me.

    I think I have always has shut down/melt down over other situations of overwhelm, but as an adult, in most cases I have learned to feel the build up, get myself away and let them pass. They've been exhausting, confusing, but not dangerous or very disruptive for others. Only on rare occasions has anyone else even seen. If these are autistic phenomenon (my assessment is awaited), I could have gone my whole life not knowing that.

    However, my body and medical situations are provoking something of a different order altogether and it's getting dangerous in lots of ways. I need to see a doctor for a few things and I DARE not. I have spent over two years trying to figure this out alone. And true to aspie form, no amount of investigating thought and feeling could give me any answers. I had to analyse the detail and research my way through a thousand psychology articles and blog posts on the internet for a match to the component parts of the experience, and apply a process of elimination to all the possibilities, to come to a conclusion, that autism could underlie the phobias and be responsible for the reaction.

    I read that melt down/shut down cannot be stopped once started (and these episodes certainly are like that) but you can avoid or manage the triggers. I am now understanding that the triggers are a) my own body b) everything about the situation I have to be in to treat my body. There is no way to avoid this, and I can't see a way to manage it. I'm scared.

    I am still struggling to seperate shut down from melt down...it's looking like I'm experiencing both here with a shift over my life time from shut down in medical situations to melt down - perhaps? Still analysing...

  • thanks you have added a very valuable contribution to this collection. There is one video of a french girl having a shutdown in Youtube 

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