Everything I know about me that's relevant............

Just collated this list..........honestly I will stop thinking about it soon & getting it down here will help get my mind off it (stops me worrying that I'll forget something!).

Still haven't had official confirmation of my ADOS date (told by phone last week that it's mid July) but will be glad to get it done.

Still can't imagine how ADOS will fill in the gaps, as it focusses on Social aspects rather than RRBs ..................

  • Suggestive of positive DX for Autism
    • Confirmed by NHS diagnostic report:
      • Qualitative impairments in in social and emotional reciprocity and sustaining relationships.
      • Definite difference in sensory sensitivity across Tactile, Taste, Smell, Visual / Auditory and Auditory Filtering.
      • Problems with sensory integration
      • Fleeting limited eye contact & lacked normal eye contact as a child
      • Flat tone of voice
      • Complex head / vocal / eye tics as a child (sniffing, grunting, blinking, head shaking)
      • Known as a "little professor" at primary school (I would correct teachers when they got scientific facts wrong)
      • AQ 41 (T>32), CBS 7 (T<30),
    • Circumstantial / corroborative signs:
      • EQ 16 (T<30),  RAADS-R 145, Aspie Quiz 129ND/86NT
      • Score on the RBQ2a (a new standardised self-report on Restricted and Repetitive behaviours in Adults) is 1.6. This is 0.53 standard deviations away from the ASD score in the reference, and 1.84 standard deviations away from the NT score.

      • Alexithymia
      • Aphantasia
      • Poor Affective Empathy
      • Take statements literally & rarely “read between the lines”. Find intentions hard to perceive.
      • Focus on self & little interest in others.
      • Perseveration & perfectionism
      • Succession of solo, technical hobbies often recurring
      • Chronic anxiety & depression both driven by obsessive rumination
      • Need for certainty; anxiety produced by uncertainty
      • Strong preference for routine (avoid holidays & events, same lunch every day at work)
      • Burnout after working with people
      • Alert to mistakes in detail
      • Skin picking, leg bouncing, chest rubbing
      • Unconscious / conscious throat / nose noises (grunting/snorting/sniffing)
      • Seek refuge in “flow” state through hobbies & interests & creative & abstract thoughts
      • Logophilia (I so wish I had studied Latin at school!)
      • Executive function problems; working memory, planning, impulse control, directing attention
      • Mild synaesthesia
      • Palinopsia
      • Breech birth
      • Sleep paralysis
  • Suggestive of negative DX for Autism:
    • Noted by NHS diagnostic report:
      • Good facial expressions and expressive hand gestures
      • Don’t appear to have difficulty with receptive expression
      • Insufficient evidence of Stereotyped and/or Repetitive Behaviours
      • Unable to determine significant difficulties around rigidity and adhering to routine
      • SCQ score = 11 (T>16)
    • No Prosopagnosia
    • Good judge of character (noted by colleagues)
    • Good Cognitive Empathy & theory of mind
    • Good fine motor skills
    • Good “big picture” / context thinking

EDIT 5th June 2019 - added a few extras to the list and decided I'm going to print out and show my GP when I see her later this month...........

Parents
  • Had to Google Aphantasia. Thanks for that, I  now have the word for it! I can't  picture things except in very simple terms like a diagram or child 's drawing. 

  • Also - I love medical words! Neuroplasticity, aphantasia, chromeasthesia, synaesthesia, anaesthesia, hyperglycemia, anoxyphilia, anterior cingulate gyrus, postural hypotension, etc etc all seem to have such lovely rhythms and can usually be worked out because of their roots.

  • I do like your way of thinking! From a similar perspective I prefer the word autism to autistic. Autistic sounds too 'spiky' to me and I struggle to type it on the keyboard, it doesn't flow with my hands!

  • The more I think about it, the more the diagnosis process seems to put narrow, stereotyped signs on their ticklist rather than searching for evidence of the underlying drivers

    BINGO! The 'ticklist' approach is probably pretty good when used on children up to say age 11, but beyond that becomes increasingly unreliable for mild/high-functioning/low support autism as the subject becomes increasingly adept at masking...

  • IKR? The more I think about it, the more the diagnosis process seems to put narrow, stereotyped signs on their ticklist rather than searching for evidence of the underlying drivers, which to me are a seeking of calmness via physical and/or cognitive activity that takes focus away from the external world. Being fascinated by almost anything fits into this, and it doesn't need to be trains!

    I've added "Logophilia" to my original post above. There just *had* to be a cool word for this, and if Google hadn't confirmed it, I was going to go for my very own neologism! ( :-) )

  • You've included all this in your 'evidence list'... right?

    I mean, sounds like a 'special interest' to me!

  • :-) that reminds me of words & phrases that I dislike; "Spick & Span", "Marks & Sparks", "Supercalifragilisticexpialidocious" (breaks rules and makes no sense & I know 'That's the joke'!). Maybe it's the spiky bits of those words that irk me too. Also the fact that they make no sense.

    When I used to write with a pen before keyboards took over, I used to love writing "Because" because it flows so curvaceously onto the page in cursive script. That's got me on another word association path: Curvaceous, curvilinear, cursive,  cuneiform,  bovine, because, beatific, bovine spongiform encephalopathy............ and to quote Stephen Fry: "Smoother than Slinky McSmooth, inventor of the word 'Mellifluous'" :-)

Reply
  • :-) that reminds me of words & phrases that I dislike; "Spick & Span", "Marks & Sparks", "Supercalifragilisticexpialidocious" (breaks rules and makes no sense & I know 'That's the joke'!). Maybe it's the spiky bits of those words that irk me too. Also the fact that they make no sense.

    When I used to write with a pen before keyboards took over, I used to love writing "Because" because it flows so curvaceously onto the page in cursive script. That's got me on another word association path: Curvaceous, curvilinear, cursive,  cuneiform,  bovine, because, beatific, bovine spongiform encephalopathy............ and to quote Stephen Fry: "Smoother than Slinky McSmooth, inventor of the word 'Mellifluous'" :-)

Children