ASD diagnosis for women

Hi everyone! 

I'm new here as of today. I'd like to introduce myself and a bit about why I'm here and I'm interested in speaking to anyone who can offer me any advice or insight into the ASD condition and diagnosis process, especially from the perspective of a woman.

I'm now 28 years old, and a couple of years ago after researching a lot about ASD symptoms in women, I felt a lot of them rang true with me and experiences I have had in my life. By no means do I think I am a severe sufferer, but my life is definitely shaped by the difficulties experienced by members of the ASD community. I am certain of this.

I was so certain I took myself to a local autism group and met some members so I could speak to them about their experiences with autism. There was one guy there I could relate to. He worked as a graphic designer (same as me) and experienced similar difficulties as I had. However all the members of the group were male and were experiencing symptoms which were a lot more noticeable and severe than my own. I didn't feel like this was what I behaved like, and so I wasn't sure if this could be the condition I have.

After a long wait I eventually got to see a psychiatrist whose job it was to screen me for ASD symptoms before referring me to a specialist to take an official test. She was more interested in speaking to my Dad and asking him some questions about my developmental years. My Dad said I acted normal for a child, however I was very shy, which I still am today. From this account, she decided not to refer me to see an ASD specialist. I was so distraught when she told me this I couldn't actually move or say anything. I know I have this condition, but my behaviour is not as noticeable as a males, and I was not being allowed to even be tested for it because of this.

I had just quit my job as I was having real problems working in an open plan office, and the psychiatrist said I was suffering with an anxiety disorder, and so referred me to see an occupational therapist to help me deal with working environments. I saw the occupational therapist for a while but she had nothing helpful to offer me as I am able to work, but not in an open plan office surrounded by people. And that's nothing she could change.

The occupational therapist then referred me to group counselling to help me with expressing my emotions with groups of people, and I am now in the middle of this treatment.

The one thing the group counselling has shown me, is it same difficulties I have with relating with groups of people which are all ASD symptoms. I am back where I started two years ago believing my problems are caused by an autism disorder and I don't know where to go from here. I have considered going back to the GP and asking to see the psychiatrist again, but the experience was so stressful and I had to do it all on my own, that I am not keen to have to state my case all over again.

Have any women on this forum had an experience similar to this in their journey to diagnosis? I don't think I behave in an obviously autistic way at all. I think in fact I am very low down the spectrum if I do have ASD, but I have experienced break downs and had to quit jobs because of my symptoms, so I feel like I need to complete an official assessment in order to find out why I am like this. However I don't know how I can do that if I can't even get past the screening stage to see an ASD specialist.

If anyone has any advice or insight into how I can move forward, I would be really really grateful. Thanks

Parents
  • Hi. I’m over 60 and recently diagnosed. My parents never really considered my development as different in any way, or would never admit to it, but then they never thought anything was different about the whole  family and my mother is still proud to be unique. It’s obvious to me now we are a family with high autistic traits. What’s more, the school/social services etc would probably step in if we lived like that today. My mother was never a reliable source for information about our childhoods, still isn’t and she hates psychiatrists/ psychologists and seeing doctors to this day. Dad, had he lived past 45 would not be a good source either, since he went to work before the family woke up and the children were in bed by the time he came home. Why on earth do psychiatrists only help people with parents who recognise their child had problems, are prepared to admit to them if they do, and who trust the profession enough to help and not blame? That must leave a lot of people unable to access support. I cannot be the only Aspie from a largely autistic environment where rather different behaviours etc are normal. I do just wonder if your own father can be a reliable source of information up to age 3, since I myself only realised I was somehow different when I was expected to mix with other children of my own age at school. In the end, due to my age I was assessed without any input from my mother. She would have lied anyway, even if she could remember. 

    This forum should help you decide and cope. Welcome. 

Reply
  • Hi. I’m over 60 and recently diagnosed. My parents never really considered my development as different in any way, or would never admit to it, but then they never thought anything was different about the whole  family and my mother is still proud to be unique. It’s obvious to me now we are a family with high autistic traits. What’s more, the school/social services etc would probably step in if we lived like that today. My mother was never a reliable source for information about our childhoods, still isn’t and she hates psychiatrists/ psychologists and seeing doctors to this day. Dad, had he lived past 45 would not be a good source either, since he went to work before the family woke up and the children were in bed by the time he came home. Why on earth do psychiatrists only help people with parents who recognise their child had problems, are prepared to admit to them if they do, and who trust the profession enough to help and not blame? That must leave a lot of people unable to access support. I cannot be the only Aspie from a largely autistic environment where rather different behaviours etc are normal. I do just wonder if your own father can be a reliable source of information up to age 3, since I myself only realised I was somehow different when I was expected to mix with other children of my own age at school. In the end, due to my age I was assessed without any input from my mother. She would have lied anyway, even if she could remember. 

    This forum should help you decide and cope. Welcome. 

Children
  • Hi Alice, 

    I'm sorry to hear your parents weren't supportive in your journey to discovering your autism. I can relate to your experience to an extent. My Dad has an understanding that autism is a chronic condition with extreme noticeable types of behaviour, which is of course the case for some people, but it has taken time for me to explain the idea of a spectrum to him. He does still think I was a normal child though. It's really hard for me to figure out if it's worth pursuing a diagnosis when he tells me I was only a bit shy as a child. Lots of things I've experienced from my own memory would suggest it was more severe than that, and I have learned ways of coping and masking it. My main coping mechanism is to avoid people entirely, but of course, that's not a practical solution!