older and elderly autistic adults

I'm a researcher but also a parent of two autistic adults.  I'm conducting a research study as part of my post-graduate degree focusing on older and elderly autistic adults, in particular the support they receive once they reach retirement age; where they are living; who's advocating for them; and just how safe are they.  I'm interested in hearing families' views and experiences and if anyone is happy to share this information with me please reply to this post.  Thank you.  

Parents
  • You have come here anonymously. This appears to me similar to an anonymous phone caller who wants to do a survey then asks personal questions. I find that both devious and rude. Please go through the proper channels if you are genuine. If you ARE genuine I will join in.  If you are not prepared to do that, please don’t be taking advantage of us. 

  • I’m sorry you feel this way. My research is genuine and invites RELATIVES of older autistic adults to participate. My personal details and details of the study are available once interest has been expressed. 

  • Why 'relatives'?  do you assume older autistic people are not capable of giving you that information themselves?? 

    If so you maybe better approaching a care home or day centre where the people within are more likely to have severe learning disabilities on top of their autism and maybe more your 'target audience'.

Reply
  • Why 'relatives'?  do you assume older autistic people are not capable of giving you that information themselves?? 

    If so you maybe better approaching a care home or day centre where the people within are more likely to have severe learning disabilities on top of their autism and maybe more your 'target audience'.

Children