Adult diagnosis, labels and fears

Hey everyone!

I know this is a common question, and I found many threads on this forums (as well as blog posts somewhere else about it), but I feel like they don't fully address preoccupation. Ideally I would like to have a chat with someone who's gone through this, but I find it difficult to attend local groups, specially in this state of uncertainty. If anyone wants to have a chat, here or on any other platform, I'd be more than happy to.

I have joked about being on the spectrum since I was young because of my attention to detail, my analytical skills and my somewhat lacking social skills. I never took it seriously because I was highly functional and I didn't have any of the well-known traits such as stimming or fixation with certain words. Now, as an adult (35yo), I'm starting to feel certain blocks in my life, specially dealing with social situations, and looking back at my life there are many things that can be explained really well by Asperger's or HF Autism. From small things like being fussy with food because of the texture, to massive things such as mental health issues like depression and obsessive compulsive personality disorder (OCPD).

The reason I would like to be diagnosed is to find help in overcoming my limitations. It helped in the past with depression and OCPD. Just knowing how they worked allowed me to find ways of coping with them, to the point that I wouldn't say I'm OCPD anymore (except for maybe some minor things) and my episodes of depression are now very short (a couple of days) and very far apart (can't remember when was the last one). If I can learn how ASD works in my own head, I would be able to find ways of going around it.

What is holding me back is that I don't like the idea of being labelled. It's not so much a matter of stigma, although that's part of it, but the fear that it will change my perception of myself and how others perceive me. I have always fought against being boxed. I don't like when people just accept (or not) something you do or say just because of some label, and it's something I experienced a lot with other labels I carried.

But my biggest fear is using that label to justify my limitations, or even start developing some traits because now "it's official". I know it's irrational, that just the label will not change who I am. I proved myself and others in the past that it's not your skills/talents, but what you do with them. I've done things I have never imagined I could do, so I should expect to be able to get over this as well. But the fear is there. I don't want to end up saying "sorry for my lack of filter, but I'm on the spectrum".

So I'm tempted to not give it a name and dealing with these blocks in my life as I've done before: Learn to be more compassionate towards my limitations and finding ways around them. Other than giving it a name, are there any other benefits from a formal diagnosis?

Thank you for reading :)

Parents
  • Hi Indecisive,

    There's lots of information about adult diagnosis on this page of our website including the benefits of diagnosis: http://www.autism.org.uk/about/diagnosis/adults.aspx.

    If you have further questions, you may like to contact our Autism Helpline team. They can provide you with information and advice about getting a diagnosis. You can call them on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm).Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an advisor.

    Hope that helps.

    Regards,

    Kerri-Mod


Reply
  • Hi Indecisive,

    There's lots of information about adult diagnosis on this page of our website including the benefits of diagnosis: http://www.autism.org.uk/about/diagnosis/adults.aspx.

    If you have further questions, you may like to contact our Autism Helpline team. They can provide you with information and advice about getting a diagnosis. You can call them on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm).Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an advisor.

    Hope that helps.

    Regards,

    Kerri-Mod


Children
  • Thank you! I was considering calling, but I think I need to sort this out in my head first before getting professional help. Also, I have troubles speaking on the phone and by email is quite impersonal. It would help having an online chat or even a videocall service for this type of service as I'm sure I'm not the only one around that has some trouble speaking on the phone.