Self Diagnosis vs Professional

Hi everyone,

Being new here, I'm quite surprised as to how many of you guys are self diagnosed.

It makes me wonder whether I shoud have done the same:

My route to diagnosis was started by the psychologist I see for my arthrits.

He brought it up in conversation one day and suggested I contact a colleague of his who could formally diagnose.

I would add that I suppose I self diagnosed myself as "very "quirky indeed" as a teenager.

Many other non qualified colleagues, acquaintances, and family members offered their own diagnosis over the years.

I'd never say to someone..."I reckon you've got Asperger's, mate"....Is that not a bit forward/rude?

Anyway, I saw specialists for ADHD and ASD. 

For ADHD, I scored 9/9 for combined type and, athough my ASD1 report is not in yet, the psychologist told me it was crystal clear I had what was previoulsy referred to as Asperger Syndrome after less than 1 hour.

I think I am one of those people who only listens to, or even trusts, specialists:

The problem with that is you either end up on waiting lists for ages or pay huge private fees, or both.

What do you guys think?

Parents
  • It is worth searching the forum for similar threads as there is lot of advice elsewhere on the forum.

    If you work you may prefer an official diagnosis as this will allow reasonable adjustments; you would be very lucky indeed to be allowed reasonable adjustments when self-diagnosed. This link may be of use:
    https://www.equalityhumanrights.com/en/multipage-guide/employment-workplace-adjustments

  • Thanks for that.

    Following a conversation with a psychiatrist I see about chronic pain, he gave me the name of a specialist who could formally diagnose. 

    As a result, I got an official diagnosis last week: I think it's just a matter of personal preference if you feel comfier being formally diagnosed or doing it yourself: We're all going to be the same people post diagnosis anyway.

  • Hi there sorry if I have missed it but did you get NHS diagnosis or private?

     Glad it gave you a way to be you, no more having to explain yourself.

    I am still in the process of drafting some notes to help when seeing my gp for referral. I looked into private and total costs given were £1500, two health professionals first, they then decide if a visit with pyschiatrist is needed. 

    I am stumbling with the notes or letter. I cannot do anything half hearted, I also fear failure! If I get it wrong it means the difference between a diagnosis or not,,,,well in my mind it does, a bit of anxiety?

    I also trust and always assume a specialist is right. I shape shift to fit into life.therefore when talking to the gp I understand a lot about my condition,the drugs, the chemistry behind the drugs and changes and effects it has.

    they usually assume I have a job in the field of medicine.

    they are shocked and bewildered when I tell them I am a ground worker.

     So I will have to not cope! Counter productive as I must succeed, Do I try to cope or be myself, The I know I must put across my daily issues, how I cannot cope with Disorder, how I work with people who disengage brain, I struggle when meeting clients, that’s getting a full time thing now, all the never decreasing admin for health and safety I am dyslexic! I took the choice to do manual work as my memory is so bad, fast forward thirty years and I am writing every day, whole pages, it wears me out.

    Sorry a rambling life history, I have no one to talk to about me! Sorry it just comes out in buckets..

  • This place is probably good for venting, so I wouldn't worry about ranting 

  • Thank you.

    I apologise  for ranting but it happens, life just gets complex sometimes, 

    I will bounce back, that is always a given,,,,,,well so far I have..,,,thanks to the May ears that listen on here and do there best to support. 

  • Yeh....That sounds like a lumbar bulge alright - It's crazy how much the back can hurt, however it's logically explained. The sciatic nerve root is as big as your thumb: Compromise that and....BOOM.

    If they injected your back in hozzy, it was either a steroid into the epidural cavity or a stonking great dose of local Difene...an anti-inflammatory.

    All you really need to watch out for is that it doesn't degenerate: Your right in requesting an MRI, as this would reveal if the bulge had grow, but you'd have to pay to get this done. Explore an epidural - It'd be an investment in your health

Reply
  • Yeh....That sounds like a lumbar bulge alright - It's crazy how much the back can hurt, however it's logically explained. The sciatic nerve root is as big as your thumb: Compromise that and....BOOM.

    If they injected your back in hozzy, it was either a steroid into the epidural cavity or a stonking great dose of local Difene...an anti-inflammatory.

    All you really need to watch out for is that it doesn't degenerate: Your right in requesting an MRI, as this would reveal if the bulge had grow, but you'd have to pay to get this done. Explore an epidural - It'd be an investment in your health

Children