What was your epiphany? how did you know/think you were ASD?

What led you seek diagnosis? 

  • What does NT stand for?

  • A year ago, I knew almost nothing about autism.  Except the claim that it was caused by the MMR vaccine. 

    After my latest suicide attempt in Nov 2016, a mental health team got involved and they with my sister suspected that I might be autistic. They started talking about aspergers and I thought rubbish,  I don't walk around shouting abuse at people.  I mistook aspergers for touretts syndrome. 

    My sister suggested that a formal autism diagnosis would give me some protection under the 2011 disability act.  And she said that she worked alongside people with an autism diagnosis,  and I was worse than them.

  • Still crying over this. How can I be nearly 50 and only just realised this is what I am? My Instsgram account to promote my art was what pushed me over the edge. The more successful it was the more I couldn't cope with it, i searched communication failure and it led me to blogs and here. Aģgggghhhh.

  • It was mentioned on the dating thread that this site is like being in a mirror at times..but we all have our own unique journey 

  • Plenty of stories between us for up and down. Interesting hearing about each other’s realisation. 

  • Hi Bonnie

    maybe we should produce a guide to other women...or a board game...Aspie women snakes and ladders...

    up the Laura James and down the diagnosis snake xx

  • It’s always sort of been there, but I started to think seriously about the possibility when I read ‘Odd girl out’ by Laura James, followed by Cynthia Kim’s ‘Nerdy, shy and socially inappropriate’.  I then had a couple of friends independently suggest that I was on the spectrum (including one who diagnosises children!): I then asked a group of very close friends and they also had their suspicions.  It was when my lovely mother in law said something about my niece (who is diagnosed) and I just thought “doesn’t everyone do that?!that I realised that it might be worth pursuing.

  • Grrr indeed...it is all NT mind tricks! :) 

  • no probs subtlety not really my thing LOL! 

    I was hoping I was going to be informed of my diagnosis on my final interview 6 weeks ago but I was told I'd have to wait another 4-6 weeks. Bearing mind I like many aspies suffer from anxiety thats pretty a crummy way of going about this IMHO. Something as life changing should be told to you face to face not coldly via a letter which could arrive at some undetermined time....grrr!

  • Thanks for the visual....lol......but it is scary x

  • will do!... everyday it gets more imminent, I'm bricking it every time the postie arrives! 

  • For most of us it seems a history of personal self-enquiry, the left over jigsaw piece in the box.....  Let us know how you get on with your diagnostic results.  x

  • I'm in my early fifties now but back in 1991 when I was a techie in TV production at a local university I had my first eye opener. We'd been commissioned to make a short self help video for people who were waiting to be assessed for autism as services were limited and stretched and there was a long wait. These were people who were quite a way along the spectrum but never the less as I sat there doing the sound listening to their stories I saw quite a few parallels with myself but my symptoms were milder, so dismissed it... but the thought was always there in the back of my head.

    Fast forward to about 5 or 6 years ago when my eldest lad was having difficulties at school and especially with homework. I started looking at dyslexia and dyspraxia symptoms on the internet and somehow found myself reading up on Aspergers as there seemed to be links. The more I read the more I recognised myself. Since then its been a slow accumulation of knowledge plus some difficult times personally that lead me to realise I need to get a diagnosis. Hopefully that should arrive within the next few weeks.

  • I’m on the island too. Usual story of all the signs with no explanation and no awareness until a colleague asked me if I had Dcd/dyspraxia.. my research and epiphany began! I first had the Dcd diagnosis ( mentioning adhd and social issues). That didn’t quite answer my questions. Then I had a formal adhd diagnosis with asd traits but I wasn’t satisfied with that either. Then  a specialist in women and girls diagnosed me last year. So it’s taken a while to come together and still adjusting and learning. 

  • Hello you...welcome to the island x

  • I have not yet been formally diagnosed as I have only recently connected the dots of all the difficulties I have had throughout my life. But, I would say the epiphany came when I split from my partner a few months ago.

    The relationship collapsed due to to my behaviour and how I would struggle with supposedly simple tasks and it just put too much strain on the relationship as she would essentially have to do so much as I either didn't know how or didn't do things in a "normal" way that ended up causing problems.

    There were some hints shortly before this, as one of her daughters is on the spectrum and we were like two peas in a pod in the way we would deal with certain situations, although at the time I think I was in denial as I had tried so hard to be "normal", which ironically made my behaviours more apparent and difficult to live with. Also, both my ex and a previous ex had asked or thought I may be on the spectrum although again at the time I believe I was in denial.

    It was only after the relationship ended that I opened my eyes to the possibility that it was something more than just anxiety or depression (things I have and do at times suffer from) that made me feel so different to everyone else. So, I began to explore various avenues before finally realising I am on the spectrum as so much fits with how I feel and how I behave.

  • Just been diagnosed, at last in my diagnosis I have a home for my identity

    And I need a home as its been a much travelled road 

    What kicked me into it was reading on the internet parallels to me in strangers, it was a revelation

  • It was a slow realisation for me, brought on by hearing about it on tv, doing some research online, reading books etc. I found the topic interesting for its own sake but the more i read the more i figured it applied to me. My family had been 'joking' for years that if i was on the Spectrum it would explain a lot, so i think they knew before i did! I'm sticking with self-diagnosed for now though.

  • I was referred for counseling and had two assessment sessions with the counselor but at the end of the second session she declined to offer me more counseling because she thought I was autistic. I sought a diagnosis as much as anything to prove the counselor wrong but I was diagnosed with ASD, specifically Asperger's, in December 2015 so maybe she was correct although if she was I still think it was for invalid reasons.

  • there is nothing wrong with wanting certainty in an uncertain world. Slight smile