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Just got my diagnosis...

Fay

Hi everyone,

My name is Kate. I am 36 years old and I got my diagnosis today. I actually feel so relived. I have struggled all my life and now I know why. 

Does anyone have experience with working from home? I have my own business but because of burnout etc I cannot afford to pay bills recently. Does anyone know where I can get extra support with this please? Being self employed is the best thing for me as I cannot hold onto a regular job and past jobs have made me unwell.

Thank you in advance,

Kate Slight smile

  • in reply to VLD

    I should have said that I did not get my diagnosis until after I retired.

  • I worked from home for over 30 years up until I retired in 2021. I had a seperate room as an office then tried not to go into it outside of working hours. I also set up a schedule so that I started and finished work at set times, not that I was always able to keep to this. Most important was to go for a walk on my own at lunchtime. 

    Hope this helps

  • Hi Kate, glad your diagnosis has given you some comfort.

    As for support, you can an apply for personal independent payment (PIP), it basically replaced disability allowance a few years ago I think. It’s not means tested, just a lengthy form to explain how the condition affect you and possible a phone call. Hope that helps.

  • Congrats on your diagnosis, I’m self employed and have had a lot of time away from work over the last year during a massive burnout. Luckily my wife works full time so we muddled through. We are selling our house and downsizing, I’ve managed to get back to work now working shorter days, 3-4 days a week. There unfortunately isn’t a lot of state help.