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lonely and want understanding

babs

Hiya, i am a mum to 5, with a 7 year old girl with a.s.d, shes also in remission of cancer, just wander how much more, me and my family can take. My family are not supportive, and the kids dad blames me for her illnesses, just want to talk to someone that finds life as difficult as me, at the mo. Cant believe how much of an impact all this has had on my other kids, just want reassurance it will get better xxxx

  • This is true. I am 24, the same age as your daughter, and was only diagnosed age 21. School were hopeless, and my parents - particularly my Mother - were blamed. I got assessed age 10 by an Ed Psych and was given an IQ test. This showed a massive gap between my verbal and performance ability. Highly verbal  - my reading age was 15, but my comprehension age was only 8 - I could not understand chronology, shapes, maths, and I was, I quote, 'emotionally immature'. But nothing was done. It took a worsening of my OCD for me to finally get diagnosed, but not without a fight.

  • Hi, I am 45 yrs of age and I have a daughter aged 24 with Asperger.Because my daughter is so complex no one really knows what is the cause of her special needs is. However they seem to think she displays more Asperger then ADHD like her brother had.

    I have been throuhg every sort of turmoil you can think of, from isolation to despair, regret, guilt,loneliness,hardship and most of all not being understood by family and also in the professional field. Because Aspeger was not so common as it is now it took till the age of 13 that they noticed something wasn't right with my child. They blamed it on my parenting skills. I had no help from any one, no support from the Social Services or Doctors apart from the Educational Department for sending my daughter to a boarding school where they felt that she would get a better education. It was then they noticed that she showed signs of Asperger. It has been a long road believe me, sometimes you will feel like pulling your hair out, crying, feeling overwhelmed and exhausted emotionally and physically. It does get better, hang on in there.Smile

  • i not in the same boat as you, but i do have a 3 year old who is austistic.  But has never been seriously ill.

    Have you asked your doctor/health visitor if there are any organisations that you can get in touch with to even just to talk about your problems. You could aslo ask citzens advice bureau they usually have lots of information that might be able to help you.

    the father of your child is a.s.d. probably doesn't understand what is going on and needs time to adjust to everything.

  • Hi

    I have a son of 16 years diagnosed with asd when he was 11 years old.

    You sound like you are having a difficult time. Has your daughter just recently been diagnosed asd?

    We have times when I despair although not too bad at present 

    Hopefully a parent with a younger child will respond to this post as they may be in a better position to give you the answers you need

    Take care