He’s to young

Hello I’m new on here and not sure if anything has been posted like this before. But I have 3 young boys my youngest is 2 and although I’ve not had any direct contact with anyone that’s had autism to know the signs I feel like he’s showing signs so I approached my health visitor about it and asked for his 2 year check to be when he’s 2 just incase there delayed as iv got concerns of autism. The health visitor on the phone was like ‘he’s to young to be showing signs of autism but carry on’ as if I’m having her on or something. She actually got me an appointment the next day which I was happy with I got a phone call an hour before the appointment from the person that was doing the assessment and said she couldn’t really do anything I can bring him if I want but she can’t do anything. I insisted on her seeing him even tho she was very reluctant and when she saw him and observed him she agreed that there was somthing so she referred him for speech therapy, paediatrician and I think it was occupational health or somthing like that which was great finally someone took me seriously. A couple of weeks later we get a letter to say he’s been rejected for speech therapy no explanation no wat happens next so I phoned the health visitor again to find out wat was going on so again someone that hasn’t seen my child said I need to wait 6 months to be assessed again because they can grow out of these things. I feel like hitting my head on a break wall has anyone else had these difficulties I just want the support and help he needs. Sorry for the rant xxx

  • You’re obviously an intuitive and loving mother and he’s lucky to have you :) 

    With you on his side your son has a bright future ahead - whatever struggles he might face along the way he’ll have your constant support, and he’ll be ok x 

    My son’s are both adults now and they are the greatest blessing I could ever have wished for. The fact that they’re autistic has never made me any less proud and privileged to be their mother. Actually I think it’s made me even more proud - because they’ve faced so many challenges and always worked so hard to keep going, and be good, kind, loving people, no matter how difficult life seemed at times. I envy you for having all that ahead of you - every year is precious and I wish I could go back and do it all again! 

  • Thank you so much iv read all ur comments and I think you’re right I did say to my husband even if he had the speech therapy now he wouldn’t engage with it anyway. I think I just needed reassurance that I’m doing everything I can for him and just keep pushing for help in the future. Thank you I really do appreciate it.

  • Yes - I can understand your frustration. I think it’s not easy to get help with much at all these days - and this is no exception. Asking you to wait six months seems pointless - but at the same time a six month wait won’t cause your son any harm. You could go back to them and push harder to get seen earlier - but in terms of your son’s welfare it won’t make a huge amount of difference. In the meantime you can do all the research about autism that is helpful so that when you do go back you are very prepared with all the relevant information you need. It just gives you a bit more time to get organised to approach having an assessment for your child. In the meantime all you’re finding out just helps you to support your son in the best possible way. 
    Both my children - now adults - have a diagnosis, and this year I also received a diagnosis of autism. A diagnosis is extremely helpful for when your child is in childcare or school - but in the meantime it’s not essential. It won’t change much at all while your son is 2 or 3 years old. So if i was in your shoes I’d be patient and do your research - and go back in 6 months as they suggest. My youngest was diagnosed at 10 years old, and my eldest in his mid twenties - so you’re doing well to be tackling this already. It’s going to be ok x 

  • He does sound autistic from that description. 

  • What are the signs you’re picking up on that make you think he has autism?

    And also: don’t panic about a 6 month delay. The truth is that if your son is diagnosed at 2 or 3 he still probably won’t get much in terms of help or support. A diagnosis is helpful and you’re  right to look into that - but your son won’t be missing out on much if the diagnosed is delayed a little at this point. In the meantime do your research about autism (in children of your son’s particularly) - because knowledge is power. Don’t panic though. Concentrate on meeting your son’s needs right now - diagnosis or no diagnosis. 

  • Frankly most of the adjustments and special support that are done for autism are done at school-age. Speech therapy is probably the only one that I can think of that you might get before school. Diagnosis before the age of three has traditionally be considered tricky and not always super reliable.

    if you feel strongly about getting speech therapy before school-age I would consider getting your GP involved. I would imagine their opinion would have considerably more weight than the health visitors.

  • O thank you I just presumed because she said that. Yeah il look in to that thank you 

  • But clicking a pen is just one highish frequency, if he has low frequency hearing loss he’ll still hear that but not low pitch noises and parts of speech. I think you need to tell your concerns to a doctor your health visitors don’t seem very clued up about anything if she’s thinking that clicking a pen counts as a hearing test

  • I have said in a reply to the previous comment what my concerns with my child were. My concern isn’t the fact of him being autistic I’m very open minded and just want the help and support for him. My concern is how people in the healthcare profession that I have come across have been so dismissive of it with out even seeing him. If a mother is showing a concern it should be dealt with seriously and not just tried to be brushed off with he will grow out of it or he’s to young.

  • You don't specify the grounds for your concerns, but two is about when parents might start noticing. I have to assume that your lad is missing some of his milestones.  Autism of course might not be the only potential cause for whatever is concerning you and your health visitor and GP should be watching carefully if he appears to have any developmental delays.

    I would familiarise yourself with the early signs of Autism and make notes as he grows.  Don't get overly worried about anything at this point, just monitor.  If he is autistic, it's not the end of the world.  Some of us even enjoy being autistic.  But, obviously you don't want to miss out on that or any other relevant diagnosis for any other condition, where the right help may be required.

    Keep the dialogue open with the health care professionals and education people.

  • When we had the 2 year check I said he doesn’t respond to his name she shouted his name he didn’t respond but I said he will respond to clicky noises so she had a pen that clicked and started clicking it and he looked towards her straight away and she said thers nothing wrong with his hearing. It’s just frustrating that you’re made to think he will grow out of it when iv had 2 other boys and he’s completely different to them. At the moment he’s a very happy child doesn’t really have melt downs or anything I just want some support and know I’m doing everything I can for him which hopefully if I keep pushing he will it’s just frustrating that no one takes you seriously.

  • Oh OK, it sounds like a possibility. Hopefully the paediatrician referral won’t be cancelled. Might also be worth asking the health visitor or GP to arrange a hearing check as well. I am partially deaf I can hear that people are talking but can’t make out all the words. Even a mild or moderate hearing loss can affect kids speech and language acquisition 

  • Sorry I didn’t explain myself very well I was just saying iv not had any direct contact with anyone to know if what my child is displaying is signs but from what iv googled and tried to look in to myself I believe it’s autism. He’s walking on tip toes, not talking, he had regression after he turned one, it’s like he’s in his own little bubble doesn’t respond to words but more tone of voices and sounds. Likes standing on his head, falling on to the sofa, climbing as high as he can, he hand waves, stomps feet, he’s just started banging his head on things, he puts everything in his mouth, he likes rough textures on his tongue like brick walls, he doesn’t give eye contact, when he hurts himself he doesn’t want comfort or cuddles.

  • I think you need to find out what the signs are, how can you know that he’s autistic when you’ve pretty much said you don’t know what it is?. 2 is still very young but some children can be diagnosed at that age. But there are also things which are more normal in the under 3s but if they are still showing those behaviours by school age then there is more suspicion of autism.