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He’s to young

Sarah P

Hello I’m new on here and not sure if anything has been posted like this before. But I have 3 young boys my youngest is 2 and although I’ve not had any direct contact with anyone that’s had autism to know the signs I feel like he’s showing signs so I approached my health visitor about it and asked for his 2 year check to be when he’s 2 just incase there delayed as iv got concerns of autism. The health visitor on the phone was like ‘he’s to young to be showing signs of autism but carry on’ as if I’m having her on or something. She actually got me an appointment the next day which I was happy with I got a phone call an hour before the appointment from the person that was doing the assessment and said she couldn’t really do anything I can bring him if I want but she can’t do anything. I insisted on her seeing him even tho she was very reluctant and when she saw him and observed him she agreed that there was somthing so she referred him for speech therapy, paediatrician and I think it was occupational health or somthing like that which was great finally someone took me seriously. A couple of weeks later we get a letter to say he’s been rejected for speech therapy no explanation no wat happens next so I phoned the health visitor again to find out wat was going on so again someone that hasn’t seen my child said I need to wait 6 months to be assessed again because they can grow out of these things. I feel like hitting my head on a break wall has anyone else had these difficulties I just want the support and help he needs. Sorry for the rant xxx

Parents

  • I think you need to find out what the signs are, how can you know that he’s autistic when you’ve pretty much said you don’t know what it is?. 2 is still very young but some children can be diagnosed at that age. But there are also things which are more normal in the under 3s but if they are still showing those behaviours by school age then there is more suspicion of autism. 

  • in reply to GuybrushThreepwood

    Sorry I didn’t explain myself very well I was just saying iv not had any direct contact with anyone to know if what my child is displaying is signs but from what iv googled and tried to look in to myself I believe it’s autism. He’s walking on tip toes, not talking, he had regression after he turned one, it’s like he’s in his own little bubble doesn’t respond to words but more tone of voices and sounds. Likes standing on his head, falling on to the sofa, climbing as high as he can, he hand waves, stomps feet, he’s just started banging his head on things, he puts everything in his mouth, he likes rough textures on his tongue like brick walls, he doesn’t give eye contact, when he hurts himself he doesn’t want comfort or cuddles.

  • in reply to Sarah P

    Oh OK, it sounds like a possibility. Hopefully the paediatrician referral won’t be cancelled. Might also be worth asking the health visitor or GP to arrange a hearing check as well. I am partially deaf I can hear that people are talking but can’t make out all the words. Even a mild or moderate hearing loss can affect kids speech and language acquisition 

  • in reply to Sarah P

    Yes - I can understand your frustration. I think it’s not easy to get help with much at all these days - and this is no exception. Asking you to wait six months seems pointless - but at the same time a six month wait won’t cause your son any harm. You could go back to them and push harder to get seen earlier - but in terms of your son’s welfare it won’t make a huge amount of difference. In the meantime you can do all the research about autism that is helpful so that when you do go back you are very prepared with all the relevant information you need. It just gives you a bit more time to get organised to approach having an assessment for your child. In the meantime all you’re finding out just helps you to support your son in the best possible way. 
    Both my children - now adults - have a diagnosis, and this year I also received a diagnosis of autism. A diagnosis is extremely helpful for when your child is in childcare or school - but in the meantime it’s not essential. It won’t change much at all while your son is 2 or 3 years old. So if i was in your shoes I’d be patient and do your research - and go back in 6 months as they suggest. My youngest was diagnosed at 10 years old, and my eldest in his mid twenties - so you’re doing well to be tackling this already. It’s going to be ok x 

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  • in reply to Sarah P

    Yes - I can understand your frustration. I think it’s not easy to get help with much at all these days - and this is no exception. Asking you to wait six months seems pointless - but at the same time a six month wait won’t cause your son any harm. You could go back to them and push harder to get seen earlier - but in terms of your son’s welfare it won’t make a huge amount of difference. In the meantime you can do all the research about autism that is helpful so that when you do go back you are very prepared with all the relevant information you need. It just gives you a bit more time to get organised to approach having an assessment for your child. In the meantime all you’re finding out just helps you to support your son in the best possible way. 
    Both my children - now adults - have a diagnosis, and this year I also received a diagnosis of autism. A diagnosis is extremely helpful for when your child is in childcare or school - but in the meantime it’s not essential. It won’t change much at all while your son is 2 or 3 years old. So if i was in your shoes I’d be patient and do your research - and go back in 6 months as they suggest. My youngest was diagnosed at 10 years old, and my eldest in his mid twenties - so you’re doing well to be tackling this already. It’s going to be ok x 

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